,,,,dying to know how your appt was yesterday w/Dr. Martin?
cari
FOR ALI
Re: FOR ALI
Hi Cary and my respective PNE friends,
My appointment with Dr. Martin Hal went very well indeed.I spent almost two hours with him and he discussed and checked everything in detail.I don't have Piriformis muscle syndrome,SIJD andPosterior femoral Cutaneous nerve decompression.I strictly have bilaterally PNE which I was already aware off.
As far as PNE is concerned,he has done about 5 patients and he monitoring their recovery very closely.He uses an endoscope to see the ligament grip .He goes through the Obturator muscle to see the Alcock's Canal and at the moment he has limited access to the Alcock's Canal.However,he is working to get a better access to the Alcock's Canal.
He will not divide the Sacrotuberous ligament because as an orthopedic surgeon he strongly believes that ST is pivotal for Pelvic instability like other ligaments are in the respective body .However,he will cut the falciform process of the Sacrotuberous ligament and he will divide the Sacrospinous ligament if needed.
He isn't ready as yet to start doing PNE patients.He wants to monitor the patients that he has already done and then publish his results.He believes that he will be ready by next year to start doing PNE surgeries ,but he wants to see consistent results first from his first batch of patients.
He also believes that TG approach is very invasive and it creates a lot of scar tissue which in turn leads to re-entrapment of the Pudendal nerve.
He read Dr. potter's MRI like a magician and he loved it.He traced the Pudendal nerve all along it's path and showed me the points of entrapment.He is going to get in touch wih Dr. Potter regarding the imaging protocol.
He does treat Piriformis muscle syndrome,Posterior Femoral Cutaneous nerve and Sciatic nerve issues.
He is very professional,kind,intelligent,has very good bed manners, eager to learn and not greedy at all.
Regards,
Ali
My appointment with Dr. Martin Hal went very well indeed.I spent almost two hours with him and he discussed and checked everything in detail.I don't have Piriformis muscle syndrome,SIJD andPosterior femoral Cutaneous nerve decompression.I strictly have bilaterally PNE which I was already aware off.
As far as PNE is concerned,he has done about 5 patients and he monitoring their recovery very closely.He uses an endoscope to see the ligament grip .He goes through the Obturator muscle to see the Alcock's Canal and at the moment he has limited access to the Alcock's Canal.However,he is working to get a better access to the Alcock's Canal.
He will not divide the Sacrotuberous ligament because as an orthopedic surgeon he strongly believes that ST is pivotal for Pelvic instability like other ligaments are in the respective body .However,he will cut the falciform process of the Sacrotuberous ligament and he will divide the Sacrospinous ligament if needed.
He isn't ready as yet to start doing PNE patients.He wants to monitor the patients that he has already done and then publish his results.He believes that he will be ready by next year to start doing PNE surgeries ,but he wants to see consistent results first from his first batch of patients.
He also believes that TG approach is very invasive and it creates a lot of scar tissue which in turn leads to re-entrapment of the Pudendal nerve.
He read Dr. potter's MRI like a magician and he loved it.He traced the Pudendal nerve all along it's path and showed me the points of entrapment.He is going to get in touch wih Dr. Potter regarding the imaging protocol.
He does treat Piriformis muscle syndrome,Posterior Femoral Cutaneous nerve and Sciatic nerve issues.
He is very professional,kind,intelligent,has very good bed manners, eager to learn and not greedy at all.
Regards,
Ali
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
Re: FOR ALI
Dear Ali,
Thank you very much for sharing your experience with Dr. Martin. Although it's a tiny bit disappointing he's not ready to do PN decompressions yet; I find it very encouraging he's taking his time with this. I'm highly impressed he wants to monitor his current patients, too!
Dr. Martin sounds very promising on many levels and will (hopefully!) be worth the wait.
Warmest of regards,
Karyn
ps ... noticed you said he goes through the obturator muscle to access the AC. Would you happen to know if he does obturator release?
Thank you very much for sharing your experience with Dr. Martin. Although it's a tiny bit disappointing he's not ready to do PN decompressions yet; I find it very encouraging he's taking his time with this. I'm highly impressed he wants to monitor his current patients, too!
Dr. Martin sounds very promising on many levels and will (hopefully!) be worth the wait.
Warmest of regards,
Karyn
ps ... noticed you said he goes through the obturator muscle to access the AC. Would you happen to know if he does obturator release?
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: FOR ALI
Ali,AliPasha1 wrote: I don't have Piriformis muscle syndrome,SIJD andPosterior femoral Cutaneous nerve decompression.I strictly have bilaterally PNE which I was already aware off.
Thanks for sharing your experience with Dr. Martin. I was wondering, did he check you for SIJD, Pirifromis syndrome, and PFCN entrapment or just go off your symptoms? Or could he see that there wasn't PFCN entrapment on the Potter MRI? I am glad he doesn't think you have PFCN entrapment. But you do have ischial tuberosity pain, right? I think ischial tuberosity pain can be from PNE although I know some surgeons do not.
So, what is your plan of action now?
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
Re: FOR ALI
Faith,
He did a very comprehensive physical exam to determine that I didn't have PFCN Entrapment,SIJD or Piriformis muscle syndrome.I did mention Dellon's point of view that the sitting pain is due to the inferior cluneal nerve and not the Pudendal Nerve.
He said the sitting pain comes from the Pudendal nerve.However, if the inferior cluneal nerve somehow gets entangled with the Pudendal nerve,then it becomes a
the source of pain as far sitting is concerned.They have to overlapp somewhere I guess.
Regards,
Ali
He did a very comprehensive physical exam to determine that I didn't have PFCN Entrapment,SIJD or Piriformis muscle syndrome.I did mention Dellon's point of view that the sitting pain is due to the inferior cluneal nerve and not the Pudendal Nerve.
He said the sitting pain comes from the Pudendal nerve.However, if the inferior cluneal nerve somehow gets entangled with the Pudendal nerve,then it becomes a
the source of pain as far sitting is concerned.They have to overlapp somewhere I guess.
Regards,
Ali
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
Re: FOR ALI
Thank you for this valuable information, Ali. Since he was able to determine whether you have PFCN entrapment and piriformis syndrome by examining you, I think it would be worth a trip to OKC.
Re: FOR ALI
Very interesting, thank you for sharing all of this. If you have a Potter MRI, and have Dr. Martin examine you, it could give people like me with multiple issues some real information. It would certainly help me with further decisions. I will keep Dr. Martin in mind too. I hope he sticks with his plans of monitoring his patients.
Are any of his patients posting regularly on this forum? Sorry, I have not been posting that long, so I'm not familiar.
Ali, how long of a wait is it to see Dr. Martin?
thanks again,
Debbie
Are any of his patients posting regularly on this forum? Sorry, I have not been posting that long, so I'm not familiar.
Ali, how long of a wait is it to see Dr. Martin?
thanks again,
Debbie
Vag pain, leg burning 3/11, SIJ inj 7/11, Pelvic PT, Chiro/acupuncture,
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .
Re: FOR ALI
Ali,
I can't thank you enough for posting your info. about your visit with Dr. Martin. I was feeling so, so very discouraged by the never ending stretch of doctors in these big hospitals that don't even try to help! Then your good friend, Karyn, sent me your post. I tell you it has gotten me through the last couple of days. I see Dr. Martin on Dec. 19th! He already reviewed my reports and films, so I feel good he really thinks he can help me if he wants to see me.
How is your pain? I can't even project about the future because it scares me terribly. Are you working? I have been out of work since my bilateral decompression surgery with Dr. Conway on July 12th.
Again, thank you for posting and thinking of everyone else who may benefit from this information!
Sincerely,
Annmarie
I can't thank you enough for posting your info. about your visit with Dr. Martin. I was feeling so, so very discouraged by the never ending stretch of doctors in these big hospitals that don't even try to help! Then your good friend, Karyn, sent me your post. I tell you it has gotten me through the last couple of days. I see Dr. Martin on Dec. 19th! He already reviewed my reports and films, so I feel good he really thinks he can help me if he wants to see me.
How is your pain? I can't even project about the future because it scares me terribly. Are you working? I have been out of work since my bilateral decompression surgery with Dr. Conway on July 12th.
Again, thank you for posting and thinking of everyone else who may benefit from this information!
Sincerely,
Annmarie
Marathoner
peroneal pain-1994
1999 ischial tuberosity pains/obturator spasm. Stopped running,did elliptical & wts.
6/2010 right pelvis rotated, got massage,after got rectal burning & pain down legs.Soon Vaginal pain
Tried many PT's, Cold laser therapy, accupunture, ect. from 1994-2011
Trigger points w/Dr.Bailey 8/2010-6/2011
Nerve Blocks w/Dr.Quesada12/2010-9/2011
Bi. Pudendal Decompression surgery via TG Dr.Conway 7/2011
Sciatic,PFCN,Superior Gluteal,Piriformis surgery 1/2012
peroneal pain-1994
1999 ischial tuberosity pains/obturator spasm. Stopped running,did elliptical & wts.
6/2010 right pelvis rotated, got massage,after got rectal burning & pain down legs.Soon Vaginal pain
Tried many PT's, Cold laser therapy, accupunture, ect. from 1994-2011
Trigger points w/Dr.Bailey 8/2010-6/2011
Nerve Blocks w/Dr.Quesada12/2010-9/2011
Bi. Pudendal Decompression surgery via TG Dr.Conway 7/2011
Sciatic,PFCN,Superior Gluteal,Piriformis surgery 1/2012
Re: FOR ALI
Hey Annmarie,
Be sure to keep us posted on your experience with Dr. Martin too. Cool that you are seeing him so soon!
Best of luck,
Debbie
Be sure to keep us posted on your experience with Dr. Martin too. Cool that you are seeing him so soon!
Best of luck,
Debbie
Vag pain, leg burning 3/11, SIJ inj 7/11, Pelvic PT, Chiro/acupuncture,
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .
Re: FOR ALI
Annemarie,
Would you mind sharing Why you are seeing dr Martin, like where your pain is? Did your TG make you worse or are you experiencing new pain?
Would you mind sharing Why you are seeing dr Martin, like where your pain is? Did your TG make you worse or are you experiencing new pain?
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com