Health Organization for Pudendal Education

Please sign this petition for the upcoming American Society for Peripheral Nerve meeting. Our goal is to get as many signatures as possible. Please do not "double sign." http://www.ipetitions.com/petition/brin ... apment-to/

THE UPCOMING MEETING OF THE AMERICAN SOCIETY FOR PERIPHERAL NERVE IS BEING HELD IN ONE WEEK. THE GOAL IS TO BRING AWARENESS AS MANY OF AMERICA'S PERIPHERAL NERVE SURGEONS WILL BE ATTENDING, ALONG WITH INTERNATIONAL SURGEONS. WE DO KNOW THAT DR. A. LEE DELLON, PROF. DR. OSKAR ASZMANN, AND DR. AARON FILLER WILL BE ATTENDING.

Thank you,

A's Mommy

Here's a copy of the petition:

THE PETITION

To: Dr. Ivan Ducic, President, American Society for Peripheral Nerve, and fellow surgeons, residents, speakers, and members of the ASPN:

There are only a mere handful of surgeons in America who are offering surgical decompression of the pudendal nerve and its branches. Patients are being put through endless different tests and "protocol" such as EMG, Pudendal Motor Terminal Latency Test, unnecessary Botox injections, and sometimes dangerous drug trials that most often prolong the suffering of the patient. While the majority of surgeons would not accept 33% cured, 33% somewhat better, 33% no change, and 1% worse as surgical results, unfortunately, these are the grim statistics with most pudendal surgery outcomes. This is unacceptable.

The majority of patients suffer silently and terribly, with a poor quality of life because of the sexual, physical, financial, and social limitations that this disease entails. Additionally, patients are constantly burdened with the cost of flying all over the country and even the world to the limited number of specialists, and fighting insurance companies to pay for treatment.

We, the undersigned, desire that more attention be given, effective immediately, to one of the most important peripheral nerves in the body. American and peripheral nerve surgeons worldwide need to sense the urgency that pudendal nerve entrapment entails, and develop appropriate and timely diagnostic testing and surgical treatment for suffering patients.

I am wondering if it's too late to suggest some changes in the petition? I am very committed to raising awareness of PNE and I applaud your efforts. I feel that our cause will be better served if we make a more positive request that builds our relationship with the physicians.

Would it be possible to change it to something like this?

There are only a few surgeons around the world who offer surgical decompression of the pudendal nerve and its branches. We are very grateful for the work and dedication of the physicians who currently treat pudendal neuralgia.

There is no standard of care for patients with pudendal neuralgia and patients typically must undergo various tests such as EMG, pudendal nerve terminal motor latency test, Botox injections, pudendal nerve blocks, and trials of numerous drugs while waiting long periods of time to obtain appointments. The current success statistics of pudendal nerve decompression surgery are 33% cured, 33% somewhat better, 33% no change, and 1% worse.

The majority of patients suffer silently and terribly, with a poor quality of life because of the sexual, physical, financial, and social limitations that this disease entails. Additionally, patients are often burdened with the cost of flying around the world to the limited number of specialists, and struggling with the insurance companies to pay for treatments.

We, the undersigned, desire that more attention be given to one of the most important peripheral nerves in the body. We request that peripheral nerve surgeons worldwide sense the urgency that pudendal nerve entrapment entails, and develop appropriate and timely diagnostic testing and surgical treatment for suffering patients.

Sounds good, V.

I'll change it

Thx
J

I am having trouble with the website from my nook but will try to gat on my regular computer to sign up. Also wanted to get this petetion back on the recently viewed posts so others see and sign up. Thanks
Janet

I signed. Thanks for doing this.

Emily B.

signed it. Fight PNE! Everybody please sign this.
Shawn

Signed

I have signed today

I have signed.

Debbie

Signed.. Hope this will help raise awareness for those suffering in silence..