Help with Maine Care

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Tiny Dancer
Posts: 51
Joined: Fri Sep 17, 2010 5:28 pm
Location: Northern Virginia

Help with Maine Care

Post by Tiny Dancer »

Hello All,

I have a friend that had surgery with Dr. Conway in September. He took Maine Care (Maine's form of Medicare) in an attempt to help her. Now Dr. Conway has dropped Maine Care and she can't get a referral from him so she can see Dr. Quesada for Pain Management. She can't get a referral from him so she can go to any pain management doctor.

She saw a PT twice...that is all she is allowed. The PT that she saw suggested exercises that put her in even more pain. Now she's certain that she's further entrapped. I have tried to talk to her on those subjects but I'm failing. My friend is in horrible pain :cry: and I'm truly afraid of what she might do. She's has given up. And I only know her through my computer but she really needs help. Maine Care just overwhelms her. Please send hope and help.

Kate

Does anyone know of a pain management doctor in Maine that is familiar with pudendal pain? She went to one that gave her a few vicodan and then said he didn't know what else to do for her.
Had PN since childbirth 1968
Had MRI,MRN,EMG,trigger point injections,3 steriod nerve blocks, pelvic plexus CT
Seeing Dr. Hibner Sept.29,2010
MEDS: Cymbalta 120mg, Elavil 25mg, Valium Suppositories, Fentanyl patch
Surgery w/ Dr. Hibner 3/14/11
Pain did not go away until I was given a steriod block to broken coccyx
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Help with Maine Care

Post by Karyn »

Hi Kate,
It could be me, but ... Seems like something is missing. I don't understand why Dr. Conway can't refer your friend, as her surgeon. I would think the bigger question would be: Does Dr. Q take Maine Care insurance?
My heart goes out to her. I hope she's able to find someone soon!
Best of regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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Tiny Dancer
Posts: 51
Joined: Fri Sep 17, 2010 5:28 pm
Location: Northern Virginia

Re: Help with Maine Care

Post by Tiny Dancer »

Hi Karyn,

Dr. Quesada used to take Maine Care. He had done several blocks on this lady before her surgery. I don't know about now. Doctors who do this surgery, do the surgery and then, no more. I can't really get any help from Dr. Hibner. He did a great job and then that's it. He might give me a referral, maybe.

Medicine is running out of time, money, and capable,caring people.

Kate
Had PN since childbirth 1968
Had MRI,MRN,EMG,trigger point injections,3 steriod nerve blocks, pelvic plexus CT
Seeing Dr. Hibner Sept.29,2010
MEDS: Cymbalta 120mg, Elavil 25mg, Valium Suppositories, Fentanyl patch
Surgery w/ Dr. Hibner 3/14/11
Pain did not go away until I was given a steriod block to broken coccyx
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nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: Help with Maine Care

Post by nyt »

Kate, I'm sorry to hear that you don't feel like you get any further help from Dr. Hibner after the surgery. I know several of his patients have felt pretty upset because he never did follow-up after surgery. For me, I have found him more than helpful since my surgery and have been back for treatments by him. I have changed my surgery date to Sept. and will be going back for more botox injections, not sure when yet. But personally, if I call they have been great about getting me in.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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