How do you get diagnosed with PNE?
Posted: Sun Jan 29, 2012 9:18 pm
HI: I am new to this site and am pretty sure that i have PNE. I am going to a vulvar pain specialist, but I'm not sure she knows what she is doing. I have requested a Nerve block but she was reluctant to give one. She doesn't follow the protocol listed on this site and only does a hand-guided intra-vaginal block. Is it worth it? I have done physical therapy and had some relief of symptoms, it has been a month but i am not pain-free. Questions:
1. Can you just make an appointment for an MRI with Dr. Potter with out a referring doctor. Is this diagnostic? Can she tell for sure whether you have PNE. I live outside NYC so this would be easy for me to do. Annoyingly, i have already had a lumbar MRI at Hospital for Special Surgery -- but not for PNE!!
2. Once you have a diagnosis, then what? I am doing PT, what else is there other than surgery?
3. I travel to LA a lot -- has anyone gone to one of the LA doctors listed on this site? If i were to go there, do i need to do the MRI first? Or, do they do their own diagnosis?
4. Finally, are there ANY doctors in NYC that specialize in this?
Sorry for all the questions?
1. Can you just make an appointment for an MRI with Dr. Potter with out a referring doctor. Is this diagnostic? Can she tell for sure whether you have PNE. I live outside NYC so this would be easy for me to do. Annoyingly, i have already had a lumbar MRI at Hospital for Special Surgery -- but not for PNE!!
2. Once you have a diagnosis, then what? I am doing PT, what else is there other than surgery?
3. I travel to LA a lot -- has anyone gone to one of the LA doctors listed on this site? If i were to go there, do i need to do the MRI first? Or, do they do their own diagnosis?
4. Finally, are there ANY doctors in NYC that specialize in this?
Sorry for all the questions?