Health Organization for Pudendal Education

I had a colonoscopy yesterday because my new gastro insisted I should have one because of my colitis, this the second one in the 7 months period. He told me the results were normal so he didnt send them for biopsy. The colonoscopy has flared my symptoms and I have increased pain today. How often do we have to have colonoscopy in our cases?

Hi sam - many of us have had colonoscopy to rule out other possible causes of our symptoms. Usually when they've done it once, they won't need to do it again - unless, of course, other symptoms present.

In your case, though, as you have colitis, things may well be a bit different - colitis is a separate issue from PN, I think.

So sorry that you are having a flare, I do hope that it settles soon.

That was so quick. Thanks Calluna. I hope my flare settles soon.

I have had a zillion colonoscopies/sigmoidoscopies, each one exquisitely painful. Each time, the GI surgeon would not believe my pain. Each time, he would say that my colon is in perfect condition, and that there was no need for another scope for another ten years. And each time I see him to complain about ongoing bowel/rectum/anal pain, he wants to order another scope! Ughhhh!

Dear Sam
Sorry you are having to suffer those tests I went through them all in my twentys when I also suffered with I.C.
I feel that continuing to "police" your colon and rectom this way might definitely keep an eye on your I.C whitch is good, but does not take you forward to the cause of your pain! I have suffered the pain of I.C and it's a totally different pain to my P.N.E pain.
I threw my own research whitch I have been conducting over the last three years it has been intereasting that people who have had their rectoms surgically removed have a pre dispasition to P.N.E or phantom rectal pain as the medics like to call it.
I personally feel your specialist is not looking any further than the end of his nose ! You need to seek other opinions as the frustrations will not help yourI.C
Keep pushing good luck
Anne

Thanks so much Lernica and Anne, Every procedure is so invasive but we have no other choice but to take a chance and undergo them. The opinions of doctors are so different from each other regarding this disease. I wish you all the best in your treatment.

Sam,

Was it painful during the colonoscopy or only after? I'm trying to figure out if a painful colonoscopy is potentially diagnostic for some condition, e.g. a hernia. In the case of Gigas, it was.

I hope your flare has settled down.

I did not feel anything during the colonoscopy or during that day because of the effect of anesthesia, it is only from the day after I started having increased pain, gas etc.My constipation problem is also back to square one, I think sometimes a lateral sphincerectomy will help the constipation but I have read that people with PN have more problems when they undergo this surgery, my uterus is also retroverted, I am wondering if that is causing me the problem, anyway I am in a mess.

sam wrote: . . .anyway I am in a mess.

No more than the rest of us, Sam! Many of us seem to pelvises with multiple pathologies. That's probably why we developed PN.

The flare from my colonoscopy is slowly subsiding and I now have the usual pain level, had a hydro therapy this week, it was very soothing for my SIJD though only for a short while and it is also very expensive so I thought I can do swimming, (not the frog kick). Is swimming good for PN and SIJD? I am grateful to this forum, it has provided me hope and life, I would have sunk, without this forum because of my mysterious sickness.