Health Organization for Pudendal Education

Hi Everyone,

I am looking for support as I go thru surgery on Tuesday (March 20. 2012) with Dr Conway)

I am starting to get very anxious and started looking for people who have had sucessful surgery.

Then found you as the most recent date and was hoping tha maybe you could help me.

I am not very familiar how this forum works, so any suggestions/directions would be helpful !!

Thanks , Bobbi

Hello Bobbi, welcome to the forum.

If you have a look through the Success Stories section, you'll see there are quite a few of us who have seen good results with surgery. It is very scary waiting for surgery, I remember how terrified I was. But as you will see from my signature, 6 months post op I am doing pretty well.

How did you get PN? - have you had it for long?

Hi Calluna and thank you so much for the welcome,

This pain started after a hip constrainment liner was replaced. I thought it was the tailbone. Even had harfware removed from a spinal fusion.
That didnt help. I went to several physicians in Boston and noone had any idea. I ended up At John Hopkins and it was there that I was diagnosed.
Noone there was doing the surgery so the head of neurosurgery finally sent my chart to Dr Marvel who called me and said there was a specialist in my backyard.
This was Dr Conway in New Hanpshire. I have had one surger,the TIR, which did not work. Its been 6 years and I am furious that the medical profession hasn't gotten this right. We need a male senator to have this and then maybe more dollars can go toward research.

Sorry for going on and on... Thanks for listening and how are you doing ?

hugs, Bobbi


P.S. Do you know how I can get my signature on the profile ?

Hello again Bobbi

Your situation sounds quite complicated! And you've already had one surgery for this - how long ago was that?

One thing I can help with, is the signature. Towards the top left on any page you'll see a link saying User Control Panel. Click on this link. Then select the tab saying Profile, and choose Edit Signature - and there you are.

Will be thinking of you tomorrow, I do hope that all goes well. Take care of yourself, lots of rest afterwards.

Hi Bobbi

Just wanted to add my best wishes for tomorrow - I had surgery 5 months ago, so know how you're feeling. Hope it goes well, let us know how you're getting on when you're feeling up to posting again.

Regards,

Andrew

Hi Andrew,

Thank you so much for your well wishes. I am so anxious to move along my journey.

And how are you doing ?

Hugs,Bobbi

Email: bobbimeehan@gmail.com

Hi

I'm doing OK thanks - I've posted quite a bit on the 'post surgery recovery' thread on the 'Surgery' part of the forum if you want to see what my journey post surgery has been like, I've tried to post something every 4 weeks or so.

I hope all goes well for you tomorrow, get as much rest as you can.

Andrew

Thanks Andrew, will catch up with you after the surgery

hugs,Bobbi

HI Bobby,

Was out of town when you made your original post but I just wanted to say I hope all went well. Hope to hear some positive results from you soon.

Hugs,

Violet

Hi Violet,

All is well.Came home with catheter and a sore butt.

Will catch up with you later

Hope you are doing well.

love, bobbi