Health Organization for Pudendal Education

I am now five months post op after decompression surgery with Dr Tibet.

In the last couple of weeks I have started to feel a slight improvement, fingers crossed that it lasts.

I am going to have a few physio sessions wit a good pn aware physio, and Iwas wondering if anybody who has been down this route, could tell me what they found helpful or unhelpful.

Having made a small amount of improvement I am very wary of not going backwards.

Thanks for any help.

Molly

Hi Molly,
Since my main pain started rectally the rectal treatments help the most. They did start nerve glides about 4-6 weeks post op to prevent scar tissue but not sure how I would notice that impact. Hope you continue to have improvement.
Janet

Thank you Janet for your reply,

Did the rectal treatment consist of massage, sorry to be so blunt.

And could you tell me what the glides consisted of.?

Regards Molly

Molly,
The rectal is massage within and for me mostly just on the inside edge. One of my PTs had to figurehow to help me without flaring which was truly awful last halloween. Turns out the key was to not go deep and just put the tip of the finger to the first knuckle. This was good to know when another PT came to start working on me and I told her. They do actually talk to each other but my first day with Holly was to be a day to work on my feet but I was in so much rectal stress she had to switch over and treat it. The glides are when they glide their finger over and along the nerve vaginally/ inner thigh like area with your knees up. There are descriptions on here somewhere about how to do them on yourself probably not for you yet but just so you understood. I never got the hang of it and left them to the pros.
Janet

Thanks again Janet,

I,m seeing my physio tomorrow, so I,ll let you know how Iget on.

Regards Molly

Good luck with the physio Molly. Very glad to hear that you are experiencing some improvements at last.
Take care,
Helen

Thanks guys for your input,


Having had physio todat I,m not sure that it is going to benefit me. Whilst my physio is very good and pn aware I don,t think its rehabilititive as it seems to be in America. I,m going to have a think befor deciding on any more. Just pleased at the moment that I,ve made a little bit offorward progress.

Love Molly

Molly, You may need to give it a few sessions, I do not temember but I do not think rehab kicked in right away and I think it was pretty painful for the initial nerre glides. Hang in there and any forward motion is good. Thanks for letting us know how it went.
Janet

I wasn't able to tolerate PT until about a year after surgery but I think most PNE docs would advise having it sooner than that. I found it somewhat helpful -- especially in relieving the piriformis pain that had developed as a result of PNE. They showed me how to use a TENS unit for piriformis pain and obturator internus pain and if was very effective.

Best,

Violet

Hi Guys,

Thank you both foryour input. One of the many problems Ihave as do many pn patients is that there is no physio availble on the nhs. This means not only do Ihave to travelmost of the day for a one hour appointment, but it is very costly. I have already spent thousands on trying to get relief from this condition, as I,m sure again many people have. As I am probably about to loose my job money is an issue.

Picking up onyour point Violet about pain in the obdurator muscle this was certainly a definate feature on thursday when Iwent to my physio. I do have a small tens unit , is this what you have been taught to use?

I would like to be able to do as much home trearment as possible for obvious reasons, so any help is feally appreciated.

Kind regards,

Molly