Health Organization for Pudendal Education

hi
just wanted anyone who has had pudendal nerve surgery to let me know how long it was after surgery before they had any pain reduction. i have been told by dr greenslade that its not guaranteed that i will have any improvement and it could take 2 years before i see any improvement, this seems a really long time to still be in this pain and i dont know if i can handle that

andrea

Hi Andrea,

I had my surgery in Turkey, with the laparoscopic approach.


Every pdrson is sooo different but this was my recovery.


First three months worse

Next three months back to pre op levels.
Six to nine months slow but steady improvement.

I am now ten months and Iwouls say about 30% to 40% bettef, but still have some bad days.


This is not a quick fix, Isuppose that were a spinal cord stimulator has an advantage.

Its a tough decision Ihope this is helpful


Regards Molly

Andrea,
Molly has a good start for those 9 months that sounds close to mine. I am at 22 months wow that seems long, but still not pain free and not sure when that might be - never give up hope! I am having some new improvements but maybe just the new meds. I started a new pain clinic last month and switched from neuronton to lyrica and added fentanyl patch. Also last week started water therapy. All is helping except had to back off some therapy that hurt my hips and agitated the nerve a bit. Hoping no bad affects after today's session.patience has a new defiinition but hang in there it will get better.
Janet

Andrea, the first few months were hard but by the 9th month I was able to go off of narcotics and by the 18th month I could pretty much count on a low pain day. Since then I've continued to have slow improvements -- mostly increased sitting and exercise tolerance.

Violet