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Colorado

Posted: Tue Apr 09, 2013 11:14 pm
by carolynm
I recently found out. There was someone in my little town with PN. Due to confidentiality reasons I cannot get her name. If anyone on here is from steamboat Springs, I want to find you!

Cari.

Re: Colorado

Posted: Tue Apr 09, 2013 11:37 pm
by HerMajesty
If you heard this from a health care provider...I have met several people in my city with PN through health care providers, without breaking confidentiality. The way to do it is to leave your contact info with your provider(s) and tell them you are willing to have your info distributed to any patient with the same diagnosis. That way, the other patient(s) can call you if they wish, and there is no break in confidentiality because you gave permission to have your info handed out.