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New, looking for help/support

Posted: Wed Jul 17, 2013 12:06 am
by maryflaw
Hello Ladies,

I was diagnosed with PN a year ago. I have had blocks, botox and physical therapy of which none have been significantly helpful. I do have to say that of that my physical therapist is just outstanding.

The doctor who has been guiding my case has now turned me over to Dr. Popeney, a neuroglist in Houston,Tx. Dr. Popeney believes me
to be a candidate for the PN surgery which would be performed by Dr. Ansell. The surgery would be tg. I am 61 years old and not sure at my
age that I want to have a major surgery with such a long recovery period. I am hoping for some feedback and help.

I am so very glad that I have found this site.

Re: New, looking for help/support

Posted: Thu Jul 18, 2013 9:37 pm
by janetm2
Welcome Mary,
I had surgery at 50 years old (2 years ago) and it is a long road but depending on how bad off you are might decide whether to do it. Also is it actually PNE and so surgery is the only way to help? You could also consider a pain pump or scs stimulator especially if it is just PN not PNE.
Janet

Re: New, looking for help/support

Posted: Tue Jul 23, 2013 12:09 am
by Violet M
Hello Mary,

It's a difficult decision to make. I think it depends on whether your pain levels are high, whether you have any quality of life, and how certain you are of the diagnosis. If your pain levels are high but you are in good health otherwise and expect to live for quite a few years yet it would be difficult to face living with high pain levels for a long time. My recovery from surgery was slow but it was well worth it since I have a decent life back now; however, I can understand why you would not want to go through the recovery period. I wish you all the best in your decision.

Take care,

Violet