List of activities that you cannot do

Discuss here about Medical Disability claims and Insurance possibilities for PN treatment options
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merrie
Posts: 114
Joined: Wed Oct 27, 2010 10:32 pm

List of activities that you cannot do

Post by merrie »

I working on my list of activities (both work and home) that I cannot perform due to this dreaded monster in preparation for potentially filings for disability.

For those of you who have gotten disability, what types of things did you identify other than the obvious I cannot sit or stand without severe pain!

I have things like cannot do household chores, cannot go grocery shopping, cannot sleep, cannot bend, cannot lift of carry anything more than 5 lbs.

What other types of things should I put down to help my case?

Thanks!
Merrie
PNE onset 9/2008
Weekly pelvic floor PT since 9/2008
Numerous nerve blocks 2008 - current (pn, s2-s4 epidurals, pelvic/lumbar/splanchnic sympathetic)
PRF s2,3,4 May 2009
Numerous hip injections and trigger point injections
Numerous rounds of botox (first 12/08 - most recent 5/13)
Hibner consult / Kalinkin MRI 11/10
PT with PHRC in May 2013
helen1000
Posts: 184
Joined: Fri Jul 20, 2012 7:07 pm
Location: Michigan

Re: List of activities that you cannot do

Post by helen1000 »

I would add cannot clothe decently. I can wear only baggy stuff. I cannot travel without extreme pain. Medications make me sleepy, tired, compromise my logic. I have problems with neck, shoulder, wrist, fibro besides PN. If you have anything like that add it.
8 nerve blocks rel 6 w.Met Dr. Peters,Dr. Antolack.Dr. Peters pacemaker,Dr Antolack TG operation.Maigne s.Internal PT at Dr Peters Nothing.PFCN block rel 6 w. PFCN RFA.Nothing.SI joint RFA.Nothing.Left scar tissue removal.Good.SIJD. PT of SI joint ME, and Prolo of SI and PS.Lumbar spine facets turned left. ME. T10-12 facets too wide.T10 turned left.ME and Prolo.Labral tears in left hip, spurs.Will have operation at 09/18/13,Met with Dr Conway.EMG shows left PN problem.Good impression of Dr C.
JMIL
Posts: 30
Joined: Mon Mar 25, 2013 3:43 am
Location: Pennsylvania

Re: List of activities that you cannot do

Post by JMIL »

Hi Merrie,

My advice to you would be to think of your life prior to your decrease in health. Think about what you did every day, all day long from the time you woke up until you went to bed. Then think about how your days are now and compare the two. Look at how this condition has affected your life. Write a list for your own use if it helps. Include in thinking or on your list everything from the minute you woke up in the morning until the minute you went to bed at night. Some examples (including both before and after)…. being able to dress yourself (from head to toe), shower independently, cleaning, prepare meals, work, your thought process and ability to remember things, your ability to stand, sit, walk, drive, medications, sleeping issues, walking aids, doctor limitations…Everything you were able to do until now with what you are unable to do. It’s very important for SSD to realize how seriously your condition has affected your everyday functionality to the point of now being physically disabled.

It can be frustrating process. My hope for you is to be approved on your first try. However, if you are denied the first time, please do not give up. Move forward and appeal their decision. You may want to consider hiring an attorney for an appeal if you are denied, however that is a personal decision. Regardless, stay strong and confident during this process. You’ll find on this site individual’s who were able to file and receive disability on their first attempt, to others being denied and having to appeal (some with an attorney and some without) for approval, to those still seeking approval. The most important thing for you to remember is you are not alone.

One of the members on this site, approved for disability, was my inspiration during my process. This is a wonderful site for support as well as hope, something we all need. I wish you the very best of luck and hope you will keep us updated on your progress.

Take Care,

Jen
Vulvar burning '06; Dr Goldstein 2 vestibulectomys '09 & '10; 6/09 hysterectomy resulted in 3 add'l surgeries for hemorrahaging; Dr. Marvel diagnose PN recommend surgery; Dr Echenberg '11 diagnose PNE & IC treatments unsuccessful for PNE; Dr Conway TG PN Decompression Surgery in 7/12 still intense vulvar burning & tailbone/SI Joint pain; Dr Santo 3/13 MRI arthritis in SI Joints, SC Joint injection SI Joint Injection 4/13; Dr Gordin Hershey Medical Center 4/13 intrathecal pain pump?
janetm2
Posts: 987
Joined: Sun Jun 12, 2011 10:54 pm
Location: Maryland

Re: List of activities that you cannot do

Post by janetm2 »

Merrie,
Jen seems to have it covered but if you cannot remember all you could do maybe the attached will help. It is part of some forms I had to fill out to see an Arthritis Specialist and seemed to be geared towards disability. Good luck
Janet
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2007-08 pelvic muscles spasms treated by EGS. 6/27/10 sat too long on hard chair- spasms, EGS not work Botox help, cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain surgery at age 21. TG gave me back enough sitting to keep my job & join in some social activities. I wish the best to everyone! 2019 luck with orthotics from pedorthist & great PT allowing me to get off oxycodone.
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: List of activities that you cannot do

Post by Karyn »

Hi Merrie,
You've gotten excellent replies and I'd like to add my two cents:
Just a word of caution: Please be very careful about using the word "can't", lest it come back and be thrown in your face at a later date.
You (we) can do almost anything. You (we) can do almost NOTHING without increased pain and symptoms. Simple, daily activities that "normal" people are able to carry out without batting an eye are a disability to us. Some helpful phrases may be:

I am able to dress with assistance
Sitting causes immediate pain with long term consequences
Prolonged, static standing increases pain and symptoms
Lifting more than 5 pounds increases pain and symptoms
Bending causes immediate pain with long term consequences

Jen and the others pretty much covered the rest. I wish you the best with this stressful and upsetting process. Please let us know if we can help further - we're here for you!

Kind regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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