Hi, everyone. I'm Gina and I'm a former bicyclist from Indianapolis, IN. Obviously, the reason I say "former" is because of my present condition: the dreaded Pudendal nerve. Being diagnosed with this awful condition has altered my life for the worst. It can't exercise properly, I'm barely mobile, I'm in a tremendous amount of pain and I've gained a whole lot of weight from my lack of exercise. Was it the bicycling that cause this? Perhaps it was. My doctor seems to think it was. Otherwise, I'm not really sure. All I know is that I'm trying to make the best of things and stay positive.
When I stumbled on this forum, a bittersweet sense of happiness and empathy passed over me. As happy as I am to see others in the same boat, I'm SAD to see others this way too. Anyway, I'm hoping that together we can help educate the general public on this condition. Take care, everyone! Stay strong!!!
Former Bicyclist - In lots of pain. :(
-
WishIwereNumb
- Posts: 5
- Joined: Mon Nov 22, 2010 10:16 pm
Former Bicyclist - In lots of pain. :(
Gosh, I sure do wish I was numb. ;-;
Medical alerts would also be essential for emergencies too!
Medical alerts would also be essential for emergencies too!
Re: Former Bicyclist - In lots of pain. :(
Welcome to the forum.
I think your best bet would be to have a scan done which can asses if you have an entrapped nerve. There are 2 options either the MRN or the 3T scan with Dr Hollis Potter. The 3T with Dr Potter in New York seems to be more popular and it is also covered by insurance. You will find more information about this in the MRI section of the forum.
Once you have information from the scans you can plan your next step. Here is a good thread to read.
http://www.pudendalhope.info/forum/view ... f=69&t=319
That is what I would advise anyway.
I think your best bet would be to have a scan done which can asses if you have an entrapped nerve. There are 2 options either the MRN or the 3T scan with Dr Hollis Potter. The 3T with Dr Potter in New York seems to be more popular and it is also covered by insurance. You will find more information about this in the MRI section of the forum.
Once you have information from the scans you can plan your next step. Here is a good thread to read.
http://www.pudendalhope.info/forum/view ... f=69&t=319
That is what I would advise anyway.
Tried numerous medications as well as a long period of myofascial physical therapy combined with meditation/relaxation. My pelvic floor muscles are now normal and relaxed on exam ( confirmed by many Pelvic floor PTs) yet my pain remains the same. Also have intense leg pain. Deciding on next treatment.
Re: Former Bicyclist - In lots of pain. :(
Hi Gina,
I'm sorry you have joined the club, but maybe now there is some hope for you to find help. How long have you had the pain, and what have you tried so far?
I'm sorry you have joined the club, but maybe now there is some hope for you to find help. How long have you had the pain, and what have you tried so far?
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.
I am cured. I hope you will be, too.
There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.
http://www.tipna.org
I am cured. I hope you will be, too.
There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.
http://www.tipna.org
Re: Former Bicyclist - In lots of pain. :(
Welcome Gina! 
First and foremost - Your avatar is awesome! Regardless of the post subject matter, it makes me smile every time I see it! So, a big thanks for choosing such a freakin' adorable avatar!!!
OK, so ... it's very possible you injured yourself from bicycling. Who made the PN diagnosis? Which doctors are you seeing? How long have you been having symptoms?
Glad you're here and wishing you less pain!
Warm regards,
Karyn
First and foremost - Your avatar is awesome! Regardless of the post subject matter, it makes me smile every time I see it! So, a big thanks for choosing such a freakin' adorable avatar!!!
OK, so ... it's very possible you injured yourself from bicycling. Who made the PN diagnosis? Which doctors are you seeing? How long have you been having symptoms?
Glad you're here and wishing you less pain!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Former Bicyclist - In lots of pain. :(
Hi Gina,
Just wanted to say that this forum will offer you a place for information, questions, and most of all support. I was feeling so alone until I found everyone here. I too try to stay positive and make the best of what I have been dealt. I do get down in the dumps sometimes, but I think that is ok. We are human and we have all kinds of emotions, but staying positive helps get thru this.
Wishing you well,
Gracie
Just wanted to say that this forum will offer you a place for information, questions, and most of all support. I was feeling so alone until I found everyone here. I too try to stay positive and make the best of what I have been dealt. I do get down in the dumps sometimes, but I think that is ok. We are human and we have all kinds of emotions, but staying positive helps get thru this.
Wishing you well,
Gracie
PN Pain started 12/08
Numerous nerve blocks
Diagnosed 6/09 - Pudendal nerve blocks
TIR Surgery 2/10
Still have PN pain and still looking for cure
Numerous nerve blocks
Diagnosed 6/09 - Pudendal nerve blocks
TIR Surgery 2/10
Still have PN pain and still looking for cure