Will an MRN decisively identify PN and PNE?

Discussion of magnetic resonance imaging and magnetic resonance neurography
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Grace
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Joined: Wed May 08, 2013 4:18 am

Will an MRN decisively identify PN and PNE?

Post by Grace »

I finally met Dr Peters in Royal Oak, MI. He's the specialist nearest to me. Dr. Peters listened to my story and agreed that it sounds very much like the source of the misery is the pudendal nerve. He suggested I have an MRI and and then a pudendal nerve block in order to clarify the diagnosis.

As I was searching online, I found out that there is an MR Neurography clinic in Royal Oak, too. What I understood from all I read on their website, the MRN will show clearly whether or not there is a problem with the pudendal nerve. I'm thinking, hey, why have two assessments (MRI and nerve block), when I can just have one? But as I'm reading through the comments on this site, I'm a bit confused.

Will an MRN decisively identify PN and PNE?

I appreciate feedback. Wish I could take one of you guys to all my doctor's appointments!

Cheers,
grace
Anal/rectal pain began 12/12 | Pain advanced to entire pelvis by 2/13 |
PF PT 2/13 to 7/13 |Acupuncture 7/13 to present
Pain is CONSTANT, made worse by standing, walking, kneeling
UNBEARABLE with sitting |Cushions mock me
20+ years of fibromyalgia | Interested in not losing my marbles...
My goal: To find creative ways to live and work with PN, while pursuing wellness.
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Will an MRN decisively identify PN and PNE?

Post by HerMajesty »

Decisively? No. But it might very well find something important or diagnostic. When you have debiliating pelvic pain, having a pelvic MRI makes a lot of sense.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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Karyn
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Location: Lowell, MA

Re: Will an MRN decisively identify PN and PNE?

Post by Karyn »

Hi Grace,
Grace wrote:Dr. Peters listened to my story and agreed that it sounds very much like the source of the misery is the pudendal nerve. He suggested I have an MRI and and then a pudendal nerve block in order to clarify the diagnosis.
Grace wrote:I'm thinking, hey, why have two assessments (MRI and nerve block), when I can just have one?
Well, I hate to be the bearer of bad news, but the MRI/MRN is not considered to be diagnostic when it comes to PN(E). The MRI/MRN is typically ordered to rule out other pathologies.
The nerve block is considered more diagnostic, when trying to obtain dysfunction with the pudendal nerve.
Grace wrote:Will an MRN decisively identify PN and PNE?
Agree with HM. Not really. Personally, I do find it to be helpful information, though. For instance, when I had my MRI in NY with Dr. Potter, it was helpful to me with deciding to proceed with surgery. It was just one more piece of evidence which was consistent with: symptoms, physical exam, PT, positive nerve blocks, etc ...
Do you know of anyone who's had the MRN for PN in your area?
Kind regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Richard1969
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Joined: Thu Mar 14, 2013 4:23 am
Location: Birminham, MI

Re: Will an MRN decisively identify PN and PNE?

Post by Richard1969 »

Hi Grace-

I found your post and noted that you are utilizing Dr. Peters. I too see him. I'm not cured, but feel that Dr. Peters is patient and supportive. Catherine is my PT and Dr. Cain Dimon is the anathesiologist that has done my injections.
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Grace
Posts: 56
Joined: Wed May 08, 2013 4:18 am

Re: Will an MRN decisively identify PN and PNE?

Post by Grace »

OK thanks! This is really helpful. So I will probably do the set Dr Peters suggested (MRI + Block) and drop the MRN for now. Low on funds so I have to pick and choose just now.

So great to hear of another soul presently seeing Peters. Thanks, Richard. May I ask the type of injections you get and how often.I am thinking of staying in the area for a while.
Anal/rectal pain began 12/12 | Pain advanced to entire pelvis by 2/13 |
PF PT 2/13 to 7/13 |Acupuncture 7/13 to present
Pain is CONSTANT, made worse by standing, walking, kneeling
UNBEARABLE with sitting |Cushions mock me
20+ years of fibromyalgia | Interested in not losing my marbles...
My goal: To find creative ways to live and work with PN, while pursuing wellness.
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