peripheral neuropathy
Posted: Thu Dec 05, 2013 1:38 am
Hello
I have been dealing with peripheral neuropathy throut my body for more than three years. Two years ago I developed pudendal neuralgia. ( buring, pain while sitting, feeling of golf ball in rectum, pgad, feels as tho I have to always urinate, etc) I have been to so many drs I have lost count. I now know that the two are connected, altho no one knows why or how to treat the pudenal neuralgia. I have been on gabapentin for two years and even at 1800mg a day I still have flare ups. I was on 50mg of elavil for almost a year, but I gained 30 lbs. I am searching for a dr that can put two and two together. The neurologists are able to prescribe the gabapentin for the peripheral neuropathy, but are a complete loss regarding the pudendal neuralgia. The gynecologists I have been to havent even heard of Pudendal neuralgia. I have been to rheumatologists as well , who feel there is an autoimmune element to all of this,but other than the gabapentin they dont know what to do.
I live 45 mts from NYC so you would think I would have access to the best medical minds. So far I havent. If anyone knows of a urogynocologist, gynocologist, neurologist or pain dr that can help me I would be so greatful.
Thnx
Helene
I have been dealing with peripheral neuropathy throut my body for more than three years. Two years ago I developed pudendal neuralgia. ( buring, pain while sitting, feeling of golf ball in rectum, pgad, feels as tho I have to always urinate, etc) I have been to so many drs I have lost count. I now know that the two are connected, altho no one knows why or how to treat the pudenal neuralgia. I have been on gabapentin for two years and even at 1800mg a day I still have flare ups. I was on 50mg of elavil for almost a year, but I gained 30 lbs. I am searching for a dr that can put two and two together. The neurologists are able to prescribe the gabapentin for the peripheral neuropathy, but are a complete loss regarding the pudendal neuralgia. The gynecologists I have been to havent even heard of Pudendal neuralgia. I have been to rheumatologists as well , who feel there is an autoimmune element to all of this,but other than the gabapentin they dont know what to do.
I live 45 mts from NYC so you would think I would have access to the best medical minds. So far I havent. If anyone knows of a urogynocologist, gynocologist, neurologist or pain dr that can help me I would be so greatful.
Thnx
Helene