Health Organization for Pudendal Education

Are there only a few people with PGAD?

I am wondering why there are not many people with PGAD syndrome. I read an article (I try to find and post it) that there are a lot of people in USA with PN problems but only a few with PGAD syndrome?

IS that true or are these people just ashamed to come out and say that they have that problem?

I mean if they are more people and if they would come out and say that they have these syndrome I think people with PGAD could more help, or?

Newspaper give these people hard time to tell what they are feeling. Once they come out and say that they have PGAD problems they will be stamped as sex monster.

What is your opinion?

I should think there are many people of both sexes who have PGAD either on its own or a mixture of that and PN/PNE. But they choose to discuss it in a closed forum because some unscrupulous people may take advantage of their condition.

I think Dr. Beco's article said about 1/4 of his patients with pudendal neuralgia had PGAD. I don't remember reading statistics in other publications but on the PNE forums I've been on it seems like it's less than 1/4. There are people who have it who don't report it though. I've had more than one good friend who didn't tell me for a long time that they had PGAD. Of course it puts a stigma on you which is very unfortunate but it's reality. The only reason I tell anyone I had it is to help them realize they aren't alone and hope that I can help them get through it.

Violet