Dr.Dellon's publication

Published Reports and Medical Information
Useful links to PN related articles.
Post Reply
User avatar
ezer
Posts: 689
Joined: Sun Sep 19, 2010 6:53 am

Dr.Dellon's publication

Post by ezer »

We discussed Dr.Dellon on the dosrsal nerve thread. I found this interesting paragraph about nerve damage on his site. He specifically discusses carpal tunnel syndrome but it is easy to extrapolate to other nerves:

http://www.dellon.com/ps/ch1.lr.pdf
The research models I helped to develop in the early 1980’s demonstrated that within 2 months of nerve compression, fluid begins to leak from blood vessels into the nerve, that by 6 months of compression, the myelin protein covering the nerve fibers begins to get damaged, and that by one year, nerve fibers have begun to die. Scar tissue forms between the bundles within the large nerve.* The nerve itself,may become stuck to the surrounding ligaments. Once this degree of scar tissue forms, only surgery can relieve pressure on the nerve sufficiently to relieve symptoms.
Surgery must relieve pressure on the compressed nerve. Either the rock or the hard place must be removed, or the nerve itself must be moved to place without a rock or a hard place to compress it.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
pianogal
Posts: 437
Joined: Mon Sep 20, 2010 2:11 am
Location: Orange County, CA

Re: Dr.Dellon's publication

Post by pianogal »

this is amazing. thank you for posting. my PT husband always explained my pne as similar to carpal tunnel of the pelvis, but this article explains why some of these things happen beyond what my husband always said, which was that through something simple as repetitive motion can create inflammation which once stuck in a tight canal, cannot uninflame itself. But this article takes it a step beyond, giving a timeline and rationale for degeneration of the nerve.

i wonder if this theory could apply to surgical recovery as well, and if anti-inflammatories should be used more heavily post surgery, as well as supplements to aid in nerve healing.

This link talks about failed carpal tunnel surgeries. Perhaps the same theories can apply to the Pudendal Nerve.
http://www.medschool.lsuhsc.edu/neurosu ... arpal.html
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
User avatar
Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Dr.Dellon's publication

Post by Karyn »

I really enjoyed reading his paper. Unlike most of what I've read, I found this very easy to understand.
I'm soooooooo upset he doesn't accept insurance!!!!!!!! :twisted:
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
User avatar
A's Mommy
Posts: 447
Joined: Fri Sep 17, 2010 12:46 pm
Location: Pennsylvania
Contact:

Re: Dr.Dellon's publication

Post by A's Mommy »

Ezer,

Thank you for posting this article of Dellon's. It is very VALIDATING to my recent TG decompression surgery. I NEEDED THAT SURGERY.
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
User avatar
Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Dr.Dellon's publication

Post by Karyn »

Yes, I agree! It was very validating:
ezer wrote:Once this degree of scar tissue forms, only surgery can relieve pressure on the nerve sufficiently to relieve symptoms.
Surgery must relieve pressure on the compressed nerve. Either the rock or the hard place must be removed, or the nerve itself must be moved to place without a rock or a hard place to compress it.
It's nice to see in black and white what I've felt for the past couple of years! :D
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Griff522
Posts: 314
Joined: Sun Oct 10, 2010 7:42 pm
Location: Michigan

Re: Dr.Dellon's publication

Post by Griff522 »

Thanks for posting this Ezer.

This whole thing about dr's not accepting insurance is not new to me. I've encountered a couple of psychologists that would not file with my insurance. They found it too cumbersome and time consuming. And one psychologist told me "good therapists" don't take insurance because they don't want the insurance company telling them to put their patients on medication.

Anyway, I paid for my services up front and then filed it myself with my insurance company and I was reimbursed for my share of the fee. Wouldn't this be an option for Dr. Dellon as well?
Burning vulva pain began 10/09
Treated for SIJD 9/10 and burning stopped and pain localized to rt side
Surgery w/ Dr Dellon 5/11 - didn't help my pain
2012 - PT, massage therapy, and ART therapy from chiropractor
MRI showed labral tear and US of groin found hernias
2/13 - surgery for sports hernia
5/13 - still have obturator internus spasms
5/13 - appt with ortho spine dr
8/16/13 - Arthroscopic surgery to rt hip for FAI and torn labrum
User avatar
Charlie
Posts: 214
Joined: Fri Sep 17, 2010 11:48 pm

Re: Dr.Dellon's publication

Post by Charlie »

pianogal wrote:my PT husband always explained my pne as similar to carpal tunnel of the pelvis,
I know a PT who also explains PNE similar to Carpel Tunnel syndrome.

I notice this sentance in the article
She had an area of skin that felt unusual when touched (the dotted area) and a trigger point that sent the pain downwards towards that unhappy (dysesthetic) skin. This meant Carmen had a neuroma of a nerve to the skin.''
So what presents as a 'trigger point' is actually a nerve problem in this case a neuroma. Interesting.

I know others have quoted this but I also completely agree with it.
Once this degree of scar tissue forms, only surgery can relieve pressure on the nerve sufficiently to relieve symptoms.
Surgery must relieve pressure on the compressed nerve. Either the rock or the hard place must be removed, or the nerve itself must be moved to place without a rock or a hard place to compress it.
The sad thing is I expect many patient persevere with physical therapy when they really have an entrapment, as I did. I notice Dellon does not even list myofascial PT as a conservative measure to try before any of his surgeries.
Tried numerous medications as well as a long period of myofascial physical therapy combined with meditation/relaxation. My pelvic floor muscles are now normal and relaxed on exam ( confirmed by many Pelvic floor PTs) yet my pain remains the same. Also have intense leg pain. Deciding on next treatment.
User avatar
Charlie
Posts: 214
Joined: Fri Sep 17, 2010 11:48 pm

Re: Dr.Dellon's publication

Post by Charlie »

Another paper by Dellon

http://www.ncbi.nlm.nih.gov/pubmed/16286101
CONCLUSIONS: The pudendal nerve is susceptible to compression at the passage from the Alcock canal to the dorsum of the penis. Individuals exposed to repetitive mechanical irritation in this region are especially endangered.
Tried numerous medications as well as a long period of myofascial physical therapy combined with meditation/relaxation. My pelvic floor muscles are now normal and relaxed on exam ( confirmed by many Pelvic floor PTs) yet my pain remains the same. Also have intense leg pain. Deciding on next treatment.
User avatar
Cora
Posts: 155
Joined: Tue Oct 26, 2010 12:14 am
Contact:

Re: Dr.Dellon's publication

Post by Cora »

thanks for this thread - a lot to chew on.
Cora
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
Post Reply

Return to “LIBRARY - PUBLICATIONS & MEDICAL JOURNALS”