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Please advise someone!

Posted: Thu Feb 27, 2014 6:55 pm
by chrissy
What is Pulsed radio frequency neuromodulation? Is there another name for it as I don't see it on the site? Has anyone had it and what we're the results?

Re: Please advise someone!

Posted: Thu Feb 27, 2014 7:16 pm
by stephanies
Try searching under PRF, the abbreviation. That may bring up more information. I believe there are only a couple of doctors who do it right now, one in Denver, CO.

Re: Please advise someone!

Posted: Thu Feb 27, 2014 7:27 pm
by blightcp
Chrissy, I am looking into the same thing.

In talking with Dr. Conway last week he mentioned it as a possibility.

He did not have any local contact for it though.

Re: Please advise someone!

Posted: Thu Feb 27, 2014 8:47 pm
by chrissy
Mine would be under Dr baranowski in London. I am very unsure about it though. It would be if this nerve block tomorrow didn't work but I am unsure whether I would prefer to just go straight to surgery.
I wasn't sure PRF was the abbreviation cos it doesn't seem to fit!

Re: Please advise someone!

Posted: Sat Mar 01, 2014 6:37 am
by Violet M
Chrissy, you can read the January 2014 newsletter that can be accessed from the homepage at pudendalhope.org. My article discusses pulsed radio frequency ablation. From the few reports we have had on the forum, some people get dramatic improvement, others don't.

Violet

Re: Please advise someone!

Posted: Mon Mar 03, 2014 10:44 pm
by chrissy
Violet
Thanks for this I only just saw your response. I keep forgetting where I have posted things!
Will have a read of the article.

Re: Please advise someone!

Posted: Mon Mar 03, 2014 10:50 pm
by chrissy
Seems the best we can hope for without surgery is six months without pain :cry:

Re: Please advise someone!

Posted: Sat Mar 08, 2014 11:37 pm
by Violet M
It depends on what you try. Some people have pain relief for many years with a neurostimulator or pain pump. Other therapies are temporarily helpful and have to be repeated on a regular basis.

Violet