Hi all.
Posted: Sun May 25, 2014 10:13 am
This will be long I think!
I am 47 , female in the U.K. My symptoms started about 18 months ago, after I had some uterine polyps removed, after two weeks I noticed it burned to wee various urine samples nothing abnormal. Then summer last year, it felt like I had a tampon stuck, and I had a mild burning sensation about an inch in my vagina on the left hand side. Saw male gynae, he said vaginisms use a dilator, no prolapse. Carried on for a few months, a got referred to a different gynae, she said slight prolapse, cystoscole, rectoecole and cervix, lichen Scerlosis and tight levator ani and vaginal atrophy. Treatment steroid cream lichen, Ovestin cream vaginal atrophy. At this point my symptons where, burning vagina in one persific area inch in left handside where everything radiates from, left pain in and out of clitoris, very sensitive clitoris.
Started using the Ovestin cream, by the sixth day oh my goodness, my vagina and back passage where on fire, this is when everything got worse.
Was given Prozac to take by my GP, four days of Prozac I was so sick and then I started with PGAD, my GP had to stop himself smiling. The mini orgasms lasted for six weeks, especially when walking, calmed down to an on /off feeling of arousel. By this point my symptons are, burning vagina left hand side inch in, vulva,labia,clitoris, back passage,left buttock and left leg down to foot either burning or aching.
I went to see Dr Baronowski PN for U.K, he said there is no definite test but looks like PN. Saw the uro/gynae he works along side six weeks later, she said when PN touched no sign of pain very tight pelvic floor first inch in, had physio with Dr Ruth Lovegrove Jones she said not PN I did not react when touched there, started physio with another physio as the journey to Ruth was to much ( they know each other well ) she has said not PN did not react. When Maria examined me, she said the right handside of my vagina feels supple lubriacted and the first half of the left handside does to, but when you get to the area where the pain is it feels gritty and rough and there is heat where it hurts. There is what looks like a slight abrasion/ sore area it is as if the urethra is rubbing the inside of the vagina wall there. She said the right handside vagina has muscle the left does not.
Test carried out. ......MRI Neurography showed I have many tortuous veins in my uterus as in loads, I also have a profusion at L4,5 the genitalia one, bit of sceliosis and other bits and peices.
Videocystomictogram which shows my bladder and pelvic floor are in good working order. The gynae wants me to have the left Bartholins gland and perineum scanned, as the pain comes from the Bartholins gland.
Dr B said this usually happens for a reason, surgery or trauma. So it is being put down to perimeno and the pelvic floor getting weaker. I was a five times a week horse rider for ten years, had a few falls, but hadn't ridden for 18months prior to this, although when I rode my left foot and bum cheek would quite often get pins and needles.
So my symptoms at the moment are, burning feeling in vagina left handside inch in, aching perineum, burning back passage on and off, left bum cheek aching down left leg to foot, mild PGAD, burning mouth sensation and pain In teeth usually back teeth and the upper set. I can sit without awful pain just burning but choose not to, walking ok but can feel what seems like rubbing in the vagina, when I lie down it feels like sometimes there is a golf ball in my anus/ vagina.
I would say my pain is a average of three, do not leak urine and can hold it without urgency, bowels are fine. Wake in the am 95% pain free. My left bum cheek, does not like me lying on it. So only Dr B says PN, everyone else says not, but I seem to have most symptoms. Thank you for you time.x
I am 47 , female in the U.K. My symptoms started about 18 months ago, after I had some uterine polyps removed, after two weeks I noticed it burned to wee various urine samples nothing abnormal. Then summer last year, it felt like I had a tampon stuck, and I had a mild burning sensation about an inch in my vagina on the left hand side. Saw male gynae, he said vaginisms use a dilator, no prolapse. Carried on for a few months, a got referred to a different gynae, she said slight prolapse, cystoscole, rectoecole and cervix, lichen Scerlosis and tight levator ani and vaginal atrophy. Treatment steroid cream lichen, Ovestin cream vaginal atrophy. At this point my symptons where, burning vagina in one persific area inch in left handside where everything radiates from, left pain in and out of clitoris, very sensitive clitoris.
Started using the Ovestin cream, by the sixth day oh my goodness, my vagina and back passage where on fire, this is when everything got worse.
Was given Prozac to take by my GP, four days of Prozac I was so sick and then I started with PGAD, my GP had to stop himself smiling. The mini orgasms lasted for six weeks, especially when walking, calmed down to an on /off feeling of arousel. By this point my symptons are, burning vagina left hand side inch in, vulva,labia,clitoris, back passage,left buttock and left leg down to foot either burning or aching.
I went to see Dr Baronowski PN for U.K, he said there is no definite test but looks like PN. Saw the uro/gynae he works along side six weeks later, she said when PN touched no sign of pain very tight pelvic floor first inch in, had physio with Dr Ruth Lovegrove Jones she said not PN I did not react when touched there, started physio with another physio as the journey to Ruth was to much ( they know each other well ) she has said not PN did not react. When Maria examined me, she said the right handside of my vagina feels supple lubriacted and the first half of the left handside does to, but when you get to the area where the pain is it feels gritty and rough and there is heat where it hurts. There is what looks like a slight abrasion/ sore area it is as if the urethra is rubbing the inside of the vagina wall there. She said the right handside vagina has muscle the left does not.
Test carried out. ......MRI Neurography showed I have many tortuous veins in my uterus as in loads, I also have a profusion at L4,5 the genitalia one, bit of sceliosis and other bits and peices.
Videocystomictogram which shows my bladder and pelvic floor are in good working order. The gynae wants me to have the left Bartholins gland and perineum scanned, as the pain comes from the Bartholins gland.
Dr B said this usually happens for a reason, surgery or trauma. So it is being put down to perimeno and the pelvic floor getting weaker. I was a five times a week horse rider for ten years, had a few falls, but hadn't ridden for 18months prior to this, although when I rode my left foot and bum cheek would quite often get pins and needles.
So my symptoms at the moment are, burning feeling in vagina left handside inch in, aching perineum, burning back passage on and off, left bum cheek aching down left leg to foot, mild PGAD, burning mouth sensation and pain In teeth usually back teeth and the upper set. I can sit without awful pain just burning but choose not to, walking ok but can feel what seems like rubbing in the vagina, when I lie down it feels like sometimes there is a golf ball in my anus/ vagina.
I would say my pain is a average of three, do not leak urine and can hold it without urgency, bowels are fine. Wake in the am 95% pain free. My left bum cheek, does not like me lying on it. So only Dr B says PN, everyone else says not, but I seem to have most symptoms. Thank you for you time.x