Flare

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missyrg
Posts: 80
Joined: Wed Oct 20, 2010 11:14 pm

Flare

Post by missyrg »

Okay how long can a flare last? I have been in burning pain for 4 days and medication is not helping. I take Nucynta 100mg and Valium 5 mg. I am on fire and I am miserable. My local pain management dr is going to try a pudental block. I am not sure he has done this before but he answered all my questions concerning it. He said he will go in pass the bone in the lower pelvic area. I need some relief. Missy
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Flare

Post by Karyn »

Hi Missy,
I'm sorry you're in so much pain! :( What brought your flare on? Did you over extend yourself somehow? Flares last anywhere from a few hours, a few days or even weeks.
Is your PM doc familiar with the pudendal nerve? I'm not trying to frighten you, but more often than not, the blocks will cause pain flares, too.
Hugs,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
missyrg
Posts: 80
Joined: Wed Oct 20, 2010 11:14 pm

Re: Flare

Post by missyrg »

The cause intercourse with my husband. I am afraid the block will cause a major flare. I always get flares after innercorse but they have never been this painful or lasted this long. Thanks for replying!
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Flare

Post by Karyn »

Oh, no! Well, I hate to say it, but at least you know what to avoid. Does it hurt "during", too?
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
missyrg
Posts: 80
Joined: Wed Oct 20, 2010 11:14 pm

Re: Flare

Post by missyrg »

Yes it does hurt during. I try to please my husband sometimes and endure the pain. I thought the valium would help during and afterwards but it did not. Missy
missyrg
Posts: 80
Joined: Wed Oct 20, 2010 11:14 pm

Re: Flare

Post by missyrg »

My pain level today is a 9. I woke up this morning on fire. I took Cymbalta, Nucynta, and Valium. I am praying it will kick in and calm things down. I pray everyone has a bless Merry Christmas. Missy
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Flare

Post by Karyn »

Blessings and sincere wishes for relief to you, Missy!
Hugs,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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Violet M
Posts: 6885
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: Flare

Post by Violet M »

Missy, maybe you could add an ice gel pack to that list of meds. Sometimes ice works better than the meds do.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
gracie
Posts: 44
Joined: Tue Sep 28, 2010 11:22 pm

Re: Flare

Post by gracie »

Missy,
My pain mgmt guy has never treated anyone with PN, but he has done several blocks on me. The ones I had before surgery never caused any flares. They also never helped the pain. I had one yesterday post surgery and it has actually given me some relief. I am still nervous it could cause a flare, I am hoping not.
I just wanted to add, when I talked to my surgeon regarding whether my pain mgmt guy should be doing this if he never has, he told me if he treats people with pain and does blocks and/or other injections, that he could do this too. He said it was not a difficult procedure for him to do. I do trust my pain mgmt guy very much. I think you may need to go with your intuition regarding your doctor. I really hope you get some relief soon.
Gracie
PN Pain started 12/08
Numerous nerve blocks
Diagnosed 6/09 - Pudendal nerve blocks
TIR Surgery 2/10
Still have PN pain and still looking for cure
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