possible PNE

[solarmom]

Hi
I haven't posted much. Pretty sure I have PN. Have had mris of
my lumbar and pelvis which showed nothing.
My pain started left of coccyx in early september. It went lower down the left
to feeling like a knife
in my left sit bone. It then felt like a golfball in my rectum and burning on
urinating.
PT helped with the sit bone. Got better when she worked
on my obturator internus. The golf ball got better when I
got better meds(mobic and zanaflex).
Since this website implies that nothing works, or maybe
for 1 in 100 people, I hesitated to do more than pt and meds.

pt found my left hip was off and corrected that so my hips stopped
burning.
I finally did a caudal injection in early dec that helped my
sacrum burning, and decided to take a low
dose of gabapentin (300 mg nightly) to
help me sleep so the lack of
rem sleep wouldnt make me crazy.
The gabapentin
also helped with the alternating sweating/chilling at night.
I have been able to sit a bit longer with these changes.

I have given up hope of having my life back, but I'm the
breadwinner so I keep trying.
I have some good days but after bowel movements
I am in agony. I am either constipated or seem to go multiple
times per day. Is that some autonomic thing related
to a trapped nerve by rectum? Have others been able to do
anything for this?

[Violet M]

Since this website implies that nothing works, or maybe
for 1 in 100 people...

I am either constipated or seem to go multiple
times per day. Is that some autonomic thing related
to a trapped nerve by rectum? Have others been able to do
anything for this?

Maybe some people on this website imply that nothing works but I am not one who accepts the premise that nothing works except for 1 in 100 people. Many people get better and move on with their lives.

Alternating constipation and diarrhea can be a symptom of irritable bowel syndrome. http://www.mayoclinic.org/diseases-cond ... n-20024578 We had a thread on our old forum where a bunch of PN patients posted that they had symptoms of IBS but I don't know for sure the cause of the symptoms -- whether it is due to irritation of the pudendal nerve -- or something else entirely.

Violet