Hi Laura,
I haven't been on in quite a while because I have been feeling better. But I told myself that if I did start feeling better I would not forget to come back here to give some hope to people in pain--because I know how awful it is.
I don't want to jinx myself, but I got sick in February of 2014 after a protracted UTI and no one thought I had damaged my nerve...just irritated it. It took over a year, but I am now feeling better...I hope!!!! I'm still pretty nervous and anxious about it, as you can see. But on a day to day basis I am normal. I sit. No pain. No pain when I pee. No crazy "feelings" in my vagina when there should not be random feelings there. I am even having orgasms again without paying for them for days. I hope this lasts.
As to what helped...I am not really sure how much anything helped expect time, but I did physical therapy and I am on Elavil (which I hate and really want to get off of...but I am being very cautious). Actually, what helped me the most was valium, which the doctors are all afraid to prescribe.
But it relaxed my pelvic floor. One thing I found was that because of all the pain, I had started unconsciously clenching those muscles all the time and that made everything worse. I had to really work on that, and then I really started feeling better.
I know a year sounds like a long time to some and maybe a short time to others who have been in pain for years...
I hope your pain will resolve far before that. I really don't think that anyone who has not been through this can understand the kind of damage it creates to people's lives. But I guess you can recover from this...depending on the cause. I hope it is not just remission. My next goal is to get off the Elavil, but this has caused a lot of anxiety and I need to go slow.
I wish you all the best and good health!!!!