Health Organization for Pudendal Education

I just want to tell people that I was sick for close to 3 1\2 years. It took me a lot of Doctors to get a diagnosis of pudendal neuralgia. Sadly, even though I asked about endometriosis I was told I didn't have this. I finally went to a Dr who told me if I should have laparoscopic surgery to check. I did and they think that my endometriosis was pressing on my pudendal nerve. I have been off all my medication and am doing very well. I still have what they are calling "memory pain" but feel so much better! Please get this checked. I also wanted to mention I have another pain inside that a Dr told me to eat a ripe kiwi or 2 every day and it helps with pelvic pain. I thought it sounded ridiculous but it really has helped too. I am really thinking more highly of alternative medicines. (She is a Chinese Dr and acupuncturist. I love her!)

Thank you Penny. I have been diagnosed with likely widespread endometriosis via MRI. I probably should look into getting it removed. Glad to read you are much better!

Stephanies

Penny, I'm so glad you found some things that are helping you. I may have endometriosis, but I know for sure I also have adenomyosis. I've had it probably at least 8 or 9 years, maybe longer. It's a cousin of endometriosis. A pelvic ultrasound or MRI will help the doctors diagnose it, if you do have it. One can exist without the other, or you can have both of them.. The sad thing is, I'd never even heard of adenomyosis until last year or the year before. I wouldn't doubt that it's a contributing factor to my PGAD/pelvic pain. Good luck & I hope you continue to improve!