Health Organization for Pudendal Education

Hi, so I don't come on here very often, when I do it is usually to ask a question. I believe my pudendal pain came from my bladder (interstitial cystitis) my dr says I have a mild case of pn because I can sit ok most of the time. My question is, is it normal for leg (specifically thigh pain) to come and go? Sometimes it's constance then I will barely have it for a month or so. For all I know my leg pain could be bc of my lyme disease which is normal for pain to move around. So just wondering if this is normal for leg pain from pn to move around. As for me, my bladder is the root of it all

Lindsey, which part of your leg/thigh? I had a ton of inner thigh burning pain generated from the pudendal nerve and obturator internus tension. I wouldn't say it moved around though.

Violet

It is back of thighs and sometimes butt... but I have pudendal nuralgia and lyme disease which attack nerves and also moves around so idk if it's PN or lyme.

Many PN patients have posted that the pain moves around, so I don't think the fact that it moves around would really tell you whether it's PN, Lyme's, or PN caused by Lyme's.

I've seen trigger point charts showing obturator internus trigger points radiating down the back of the thigh but so does the piriformis muscle, according to the American Academy of Manual Medicine. http://www.webmanmed.com/disorders/diso ... 76601.html

Violet

I just didn't think it seemed normal to have hardly any leg pain for almost 2 months (unless I'm in the car too long) then from no where I have leg pain almost constantly when I haven't done anything to cause my legs to do that. I'm in treatment for lyme, I'm also about to start restorative excercise again, but past that, I don't know what to do for this. When I had my nerve block on pn it sent chills up my whole left side and my ears rang and I felt a little dizzy. That was because of lyme. I can't do bladder instills they make bladder worse. I skype with Dr. Echenberg as he tries to help with pgad symptoms and bladder. But what I listed above are my plans for now past that idk what to do. I know surgery is last resort thing. But Idk what other simple thimg s to look into with pelvic pain. Pt failed. Physio failed. I pray I never have to go down the road of surgery. I know it helped you but it's a scary decision to make.

Lindsey, maybe you can focus on getting your immune system strong and reducing stress levels so that maybe your body can heal itself. I'm assuming you are following the treatment protocol for Lyme's disease so hopefully over time that will heal. I'm not sure how Lyme's disease could cause a nerve entrapment so I agree with you that surgery might not be the answer in your case unless there are other things in your history that might lead you to suspect an entrapment, such as heavy exercise.

Violet

Lindsay, from your symptoms it does not seem you have PN. Honestly, get off this forum before it ruins you. Just my opinion. Focus on your immune system.