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Re: Male with Symptoms of Pudendal Nerve Problems
Posted: Wed Jan 05, 2011 8:27 am
by AliPasha1
Hi Ron,
EMG/PNMLT isn't a very reliable tool to indicate PNE,although it is helpful.You can start with a 3 Tesla MRI with Dr.
Potter in NYC and then proceed with an appoinment with with Dr. Hibner in Phoenix,Arizona.In the meantime,you can also start PN PT and see if it helps.
Another good point to start would be Dr. Jerome Weiss in SF,California.At the same time you can take an appointment with Stephanie and LizRummer and have a session or two of PT with them as well once you are in SF.
All the best,
Ali
Re: Male with Symptoms of Pudendal Nerve Problems
Posted: Mon Jan 24, 2011 1:33 am
by Violet M
Ron H wrote: I start to fall off to sleep then I am jerk /tremor back awake. If I did not have the linesta I most like would not get any sleep.
Ron, I really feel for you because I had the exact same problem and it was dreadful not being able to sleep. Clonazepam was a big help but even with that I only slept for a few hours at a time.
As I understand it, the PNMLT only measures the motor function of the nerve so it is not entirely reliable in the diagnosis because the pain can be caused by damage to the sensory nerve fibers.
A nerve block can help in the diagnosis but in rare cases can cause a permanent increase in pain.
There are some PT's in WA who treat people with PN/PNE.
http://pudendalhope.org/node/63#WA
You may want to try the least invasive options first.
Violet
Re: Male with Symptoms of Pudendal Nerve Problems
Posted: Mon Jan 24, 2011 8:30 am
by donstore
Hi Ron,
My best friend was waking up with nerve shocks in the middle of the night and Lyrica helped him a lot. It has helped me with the PN pain as well. It is expensive out of pocket but if your doctor uses the diagnosis code for fibromyalgia, insurance will often pay for it. As Ali said, Dr. Potter MRI is the only imaging test for PNE. The rest is clinical history and diagnostic blocks. Read the post of Dr. Hibner's 2010 paper for full explanation. Good luck.
Re: Male with Symptoms of Pudendal Nerve Problems
Posted: Tue Mar 22, 2016 11:56 am
by Yashodhara
Hi Ron,
At this moment I am facing the same symptom as you are, can you let me know if your sleep Jerk (Hypnagogic Jerk) is resloved? I desperately need hep. Anyone here please advice anything other than Anxiety & Anti depressant drugs.