Health Organization for Pudendal Education

Hey guys.. I don't come on here too often but I've been a member for about a year. I see Dr. Robert Echenberg,maybe u have heard of him. I have PN,vaginal issues including pgad,IC,pain,in my thighs especially my left and sensitive to touch in inner thighs. I've been skyping him since my last visit appt. In the spring. I live far from him. He wants to do Botox and more nerve blocks. I'm nervous and don't know ehat to do. Did I mention I have lyme disease? This complicates things. I just don't know what to do. There are horror stories in just about ever scenario anyone tries as well as good out comes. Is botox and nerve blocks things you do instead of surgery?

Botox and/or pudendal blocks are somethings people try instead of surgery. Some people even manage their pudendal symptoms using those two approaches. As you stated, the results with either botox or pudendal blocks that have been reported on this forum range from very good experience to very bad. Sadly, you do not know which one you will be until you try it.

YOU SAID IT NYT.
AS WITH MOST THINGS PEOPLE HAVE TRIED, THE SAME THING WILL HELP ONE AND MAKE ANOTHER PERSON WORSE. THERE ARE SOME THINGS THAT JUST DO NOT DO ANYTHING BUT MAKE POCKET BOOK LIGHTER.
I HAVE HAD A VERY BAD EXPERIENCE WITH A NERVE BLOCK.

RAY

YOU SAID IT NYT.
AS WITH MOST THINGS PEOPLE HAVE TRIED, THE SAME THING WILL HELP ONE AND MAKE ANOTHER PERSON WORSE. THERE ARE SOME THINGS THAT JUST DO NOT DO ANYTHING BUT MAKE POCKET BOOK LIGHTER.
I HAVE HAD A VERY BAD EXPERIENCE WITH A NERVE BLOCK.

RAY

I'm afraid that with botox it would add more pressure to the pudendal nerve... IS this true? Does it cause scar tissue? I also have pgad and I don't want to make that worse...

Lindsey D

I am a physician and a PN patient. First I want to ask, if you had nerve blocks, were they helpful? Nerve blocks alone are for diagnostic purposes. A physician can and often do add a steroid to see if that helps with the pain- decrease inflammation. Botox is added to release tight pelvic floor muscles. So, have you been diagnosed with a tight pelvic floor? Have you done any PT? I believe that PT with a good pelvic floor therapist is essential to diagnosing and treating and pelvic floor problem.
Hope this helps.

Botox is affirmed by the FDA for some excruciating conditions, for example, cervical dystonia (muscle fit), spasticity, inordinate sweating (hyperhidrosis), eye muscle issues, automatic developments and wrinkles (grimace lines).
Nerve blocks can be utilized for cerebral pains, for example, occipital neuralgia and group migraines. They are infusions of desensitizing pharmaceutical (nearby soporific) and mitigating steroids that can be helpful for specific sorts of migraines and other torment conditions.

Hi,

I was going to start a Botox Topic thread but I see there's one going here. I don't want to intrude on this but...

I've had positive pudendal nerve blocks.

I thought if one had definite diagnosis of PN that botox is a fairly standard treatment?

Bob 123

I had several rounds of Botox with no success. Another waste of time and money for me.

botox?