Pudendal neuralgia from 12 years
Posted: Mon May 02, 2016 5:45 pm
Hi, I'm 35 and live in Siracusa - Italy -
I have chronic pelvic pain also classified as "pudendal nerve neuralgia" in 2010.
The primary symptoms appeared 12 years ago are burning with urination/ejaculation, orgasm absent heavy sexual-affective disorders and depression.
After 6 years from onset was added chronic contraction of the pelvic floor.
I never managed to have improvements with various therapies, I quote the significant therapeutic moments:
- 2004-2005 Several Urologists in Catania: prostatitis diagnosis. Various generic antibiotic treatments and herbal products with Serenoa repens.
- 2006 prof. Guercini (urologist) - Rome: pelvic-prostatic syndrome diagnosis.
Rivotril drops + muscle relaxants, Antrolin rectal cream (lidocaine), thermal therapy with Dilatan Cones heated to anal application.
- In 2010 prof Guercini (urologist) - Rome: Physiotherapy 10 days of endo-rectal massages direct to trigger points and homemade continuation with prostate massager (interrupted for worsening symptoms)
- 2011 Dr. Giraudo (physioterapist) - Milano: External Physiotherapy on the pelvic floor interrupted by the physiotherapist who indicated a "irritating thorn" that make ineffective the treatment.
- 2011-2015 dott.Cappellano (urologist) - Milano: Diagnosis of neuralgia / neuropathy of the pudendal nerve without Alcock canal entrapment (excluded from neurophysiological tests),
Oral drugs: Laroxyl, Lyrica, Biodinoral, Dibase for 6 month and then Lyrica (up to 200mg/die), Cymbalta (up do 60mg/die) and Sirdalud (up to 4mg/die) for 3 years.
Drugs through EMG-NFS guided infiltration: coctail drugs with anesthetics + heparin (about 5 attempts) - No temporary remission
Drugs through EMG-NFS guided infiltration: Botox (two attempts) - No temporary remission
Sacral elettrode modulator Implant (PNE): two different operations performed at different times (one in peripheral position and the other more central). Explanted after failure of the respective test phases (high and low frequency).
-2016 Dr. Malaguti (neurologist) and dr. Lamarche (osteopath) - Milano: Diagnosis of neuralgia / neuropathy of the pudendal nerve without entrapment confermed by another neurophysiological tests.
Multidisciplinary therapy approach based on osteopathic manipulations (occasionally I suffer from low back pain with a L5-S1 protrusion, "kyphoscoliosis" and lower limbs dysmetria), diet improvements (for irritable bowel syndrome control that occasionally occurs), pelvic floor rehabilitation exercises.
Now I will start a course of treatment with biofeedback, electrical stimulation and physical therapy but are pessimistic.
One thing I wanted to ask is whether my symptoms can have a relationship with the L5-S1 disc protrusion.
In an old article of dr. De Bisshop was talk of the possibility of an intraspinal compression / irritation of the pudendal nerve:
http://www.perineology.com/files/e2b.htm
Thanks for the attention
I have chronic pelvic pain also classified as "pudendal nerve neuralgia" in 2010.
The primary symptoms appeared 12 years ago are burning with urination/ejaculation, orgasm absent heavy sexual-affective disorders and depression.
After 6 years from onset was added chronic contraction of the pelvic floor.
I never managed to have improvements with various therapies, I quote the significant therapeutic moments:
- 2004-2005 Several Urologists in Catania: prostatitis diagnosis. Various generic antibiotic treatments and herbal products with Serenoa repens.
- 2006 prof. Guercini (urologist) - Rome: pelvic-prostatic syndrome diagnosis.
Rivotril drops + muscle relaxants, Antrolin rectal cream (lidocaine), thermal therapy with Dilatan Cones heated to anal application.
- In 2010 prof Guercini (urologist) - Rome: Physiotherapy 10 days of endo-rectal massages direct to trigger points and homemade continuation with prostate massager (interrupted for worsening symptoms)
- 2011 Dr. Giraudo (physioterapist) - Milano: External Physiotherapy on the pelvic floor interrupted by the physiotherapist who indicated a "irritating thorn" that make ineffective the treatment.
- 2011-2015 dott.Cappellano (urologist) - Milano: Diagnosis of neuralgia / neuropathy of the pudendal nerve without Alcock canal entrapment (excluded from neurophysiological tests),
Oral drugs: Laroxyl, Lyrica, Biodinoral, Dibase for 6 month and then Lyrica (up to 200mg/die), Cymbalta (up do 60mg/die) and Sirdalud (up to 4mg/die) for 3 years.
Drugs through EMG-NFS guided infiltration: coctail drugs with anesthetics + heparin (about 5 attempts) - No temporary remission
Drugs through EMG-NFS guided infiltration: Botox (two attempts) - No temporary remission
Sacral elettrode modulator Implant (PNE): two different operations performed at different times (one in peripheral position and the other more central). Explanted after failure of the respective test phases (high and low frequency).
-2016 Dr. Malaguti (neurologist) and dr. Lamarche (osteopath) - Milano: Diagnosis of neuralgia / neuropathy of the pudendal nerve without entrapment confermed by another neurophysiological tests.
Multidisciplinary therapy approach based on osteopathic manipulations (occasionally I suffer from low back pain with a L5-S1 protrusion, "kyphoscoliosis" and lower limbs dysmetria), diet improvements (for irritable bowel syndrome control that occasionally occurs), pelvic floor rehabilitation exercises.
Now I will start a course of treatment with biofeedback, electrical stimulation and physical therapy but are pessimistic.
One thing I wanted to ask is whether my symptoms can have a relationship with the L5-S1 disc protrusion.
In an old article of dr. De Bisshop was talk of the possibility of an intraspinal compression / irritation of the pudendal nerve:
http://www.perineology.com/files/e2b.htm
Thanks for the attention