Health Organization for Pudendal Education

Hi Guys.
I had surgery July 2015 to release the PN on my left side. So it's been 17 months and I'm not a lot better. Probably only 10% better. Still avoid sitting like the plague. My question is: have any of you who have had surgery had to wait a few years before you felt true relief? I see Prof Vancaillie. We are talking about possibly getting a neuromodulator put in for pain relief. Prof Vancaillie wants me to wait and see how I am after the 2 year mark.

I wasn't able to start sitting much until after 18 months. After that I was able to slowly increase sitting time and do more and more things without causing a pain flare. I continued to see improvements for several years. I think what Dr. Vancaillie makes sense - to wait 2 years. Catherine A from Australia said it took her 3 years to recover. You can read her post at the following link: http://www.pudendalhope.info/forum/view ... ars#p48706

Violet

Hi Violet. Thank you so much for your reply. It truly has given me some hope that all is not lost yet. From what I've been reading some seem to take that little bit longer than the 1-2 year mark the Drs tell you. I suppose we are all different. I'm not going to rush into the neuromodulator just yet. I'll see how I am in another 18 months. Thanks again.

Eliza. Violet is right in saying it took me 3 years to begin to see positive improvement... And at 7 years I was a good 80% better..
it's been 10 years now since I had PNE release surgery. I have ongoing Botox injections to my right side obturator muscle. No meds. after the 7 year mark.
Not 100% cured but get great relief for around 8/9 months from Botox. It's a long, painful process as the nerve can take years to recover.

Don't give up. Neuromodulator is invasive surgery too. Don't rush into it until you've given it 3 years or more.

Catherine/ Perth. WA

Hi Eliza. I had both pudendal nerves released in Oct 2015. Professor Vancille did the block but it was another surgeon who did the surgery. I had about 70% reduction in the tingling feeling throughout my saddle area. It flicks on and off now and it doesn't always match what I've been doing, but I definitely needed the surgery. The MRI showed both sides were compressed: My nerve pain is still low compared to before the surgery and that was a year and a half ago. Hope that helps.