Finally Diagnosed W/ Underlying Disease &CAUSE of my PN! :D
Posted: Sun Dec 18, 2016 2:19 am
Hello Everyone,
I haven't posted on here in a few months. I have gone through an up and down roller coaster ride with the medical industry.
To give you a little background, I have had PN symptoms for 6-7 years and I was officially diagnosed with PN in July or August of this year. I had several other Sx's going on at the same time, tailbonw pain, sacral swelling and pain, bilateral sciatica and urinary retention.
I got an MRI of my sacrum and coccyx after my PM Dr said it was fractured (it wasn't). The MRI did however show 2 Tarlov Cysts ( marked as incidental findings)
Tarliv Cysts are rare and considered to be asymptomatic most times by all Dr's. Some Dr's refuse to believe they ever cause symptoms, which they can and do in some instances. After doing some research I realized my symptoms matched exactly! I sought out a specialist for Tarlov Cysts and he confirmed it was causing all of my symptoms.
I'm currently waiting for a diagnostic nerve block to see if only one cyst is symptomatic or if both are , then I will schedule surgery.
Lots of people who have Tarlov Cysts seem to also have PN, as the cysts are part of the nerve root sheath and typically grow on the s2 & s3 nerve roots.
Never give up looking! You know your body best and if something is rong. Don't ever let Dr's discourage you from seeking the treatment you deserve.
Kim
I haven't posted on here in a few months. I have gone through an up and down roller coaster ride with the medical industry.
To give you a little background, I have had PN symptoms for 6-7 years and I was officially diagnosed with PN in July or August of this year. I had several other Sx's going on at the same time, tailbonw pain, sacral swelling and pain, bilateral sciatica and urinary retention.
I got an MRI of my sacrum and coccyx after my PM Dr said it was fractured (it wasn't). The MRI did however show 2 Tarlov Cysts ( marked as incidental findings)
Tarliv Cysts are rare and considered to be asymptomatic most times by all Dr's. Some Dr's refuse to believe they ever cause symptoms, which they can and do in some instances. After doing some research I realized my symptoms matched exactly! I sought out a specialist for Tarlov Cysts and he confirmed it was causing all of my symptoms.
I'm currently waiting for a diagnostic nerve block to see if only one cyst is symptomatic or if both are , then I will schedule surgery.
Lots of people who have Tarlov Cysts seem to also have PN, as the cysts are part of the nerve root sheath and typically grow on the s2 & s3 nerve roots.
Never give up looking! You know your body best and if something is rong. Don't ever let Dr's discourage you from seeking the treatment you deserve.
Kim
