Pudendal Nerve Suffer for almost 20 yrs. Advice Appreciated
Posted: Tue Mar 21, 2017 7:23 am
Here's my story.
I was a wrestler in HS. I was also hit by a car twice while riding a bicycle when I was a teen. Weirdly I had an acute case of bladder frequency/urgency at a young age but then it went away until I was 22. I'm 42 now.
About 20 years ago I started with sciatica pain that led into severe burning at the tip of my penis and bladder frequency/urgency.
I went to a urologist, nothing found, nothing helped.
I ended up at a Chiropractors office and they found I had a spondylothesis at L5-S1. Their treatment for that seemed to help my pain for about five years.
The pain came back. This time the Chiropractor put me on a decompression machine. This helped the pain for aobut 10 years. Not as much but had it down to a 3-4.
About 2-3 years ago the pain slowly started to come back with a vengeance. Aside from nerve pain, bladder frequency, I now had a pain at the bottom of my right foot. Chiropractic didn't help this time. Back surgeons said there wasn't any reason for my symptoms.
I ended back at the Urologist. He sent me to a Pelvic Floor PT. She sent me for a Pelvic MRI that showed Bilateral Vascular Pelvic Congestion.
The Vascular surgeon noted a lot of collateral veins and went in to embolize. He found I had May Thurner Syndrome and stented open my left Iliac Vein in two locations.
Pain seemed slightly better. But wasn't lasting.
I went to have a consult with Dr. Prologo. He did a diagnostic CT nerve block. This brought pain down to a 2. But the pain seems much worse now.
Do I need to worry that the nerve was further damaged from the nerve block?
This is driving me absolutely crazy. I get some relief here and there but then can't duplicate it. I just feel all alone down here in south FL. There doesn't seem to be anyone around that knows anything about the Pudendal Nerve.
Any suggestions are appreciated. OR any of your thoughts. Would love to know what you think about my case.
I was a wrestler in HS. I was also hit by a car twice while riding a bicycle when I was a teen. Weirdly I had an acute case of bladder frequency/urgency at a young age but then it went away until I was 22. I'm 42 now.
About 20 years ago I started with sciatica pain that led into severe burning at the tip of my penis and bladder frequency/urgency.
I went to a urologist, nothing found, nothing helped.
I ended up at a Chiropractors office and they found I had a spondylothesis at L5-S1. Their treatment for that seemed to help my pain for about five years.
The pain came back. This time the Chiropractor put me on a decompression machine. This helped the pain for aobut 10 years. Not as much but had it down to a 3-4.
About 2-3 years ago the pain slowly started to come back with a vengeance. Aside from nerve pain, bladder frequency, I now had a pain at the bottom of my right foot. Chiropractic didn't help this time. Back surgeons said there wasn't any reason for my symptoms.
I ended back at the Urologist. He sent me to a Pelvic Floor PT. She sent me for a Pelvic MRI that showed Bilateral Vascular Pelvic Congestion.
The Vascular surgeon noted a lot of collateral veins and went in to embolize. He found I had May Thurner Syndrome and stented open my left Iliac Vein in two locations.
Pain seemed slightly better. But wasn't lasting.
I went to have a consult with Dr. Prologo. He did a diagnostic CT nerve block. This brought pain down to a 2. But the pain seems much worse now.
Do I need to worry that the nerve was further damaged from the nerve block?
This is driving me absolutely crazy. I get some relief here and there but then can't duplicate it. I just feel all alone down here in south FL. There doesn't seem to be anyone around that knows anything about the Pudendal Nerve.
Any suggestions are appreciated. OR any of your thoughts. Would love to know what you think about my case.