Is this PN or PNE?
Is this PN or PNE?
For ten months following bladder surgery, I've had a burning/stinging sensation in my right "butt cheek" whenever I sit. Can this be PN or PNE? Some of what I read on this forum makes it sound as if PN or PNE pain is usually directly in the vulva area, which mine is not.
Re: Is this PN or PNE?
Is it near the sit bone? My sitting pain was just inside the sit - bone, not in the vulvar area. You might benefit from an evaluation by a PT who knows about PN because they can sometimes help you isolate where the pain is coming from.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Re: Is this PN or PNE?
Yes! It is between the sit bone and the vulvar area...within a couple of inches of the vulvar area. I saw a pelvic floor PT who did myofascial release. She was able to get my pelvic floor completely released but the pain continues. My gyn. suspects PNE. I had a pelvic MRI that showed nothing. I will be seeing a pain specialist in April at the University of Washington. I am wondering if an MRN should be my next step...
Re: Is this PN or PNE?
Bishop, you might want to read the threads on the 3T MRI by Dr. Potter in NYC and the discussion on MRN versus MRI's. Not all MRI's are created equal. Dr. Potter usually does not read other facilities MRI's but we just had a recent post where she worked with another facility to get the correct area of images and then she read the MRI. Maybe Dr. Potter would be willing to reread your MRI or give advice if they obtained the areas to look for entrapment that need to be evaluated.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
Re: Is this PN or PNE?
Thank you, Violet - I've looked at some threads and find the info about 3-T MRIs very interesting...I didn't know there was such a test. I see there is also a dr. in Arizona (Dr. Kalinkin who works with Dr. Hibner) who does 3-T MRIs. Arizona is a lot closer to me than NY so I might investigate that. I really appreciate your input!