Pelvic Floor Scarring

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Pelvic Floor Scarring

Post by Karyn »

I just re-read the letter I sent to Dr. Shobeiri last month, prior to me cancelling the surgery. I'm going to try not to keep reading it over and over again because, well, I find this matter pretty upsetting. Instead of attaching it to my case update, I thought I'd post here because now I have a question I'd like to get your opinion on:
Would "pelvic floor scarring" feel like a "tight pelvic floor"? Below is the letter that my dear friend Ali and I worked on together:

December 5, 2010

Dr. S. Abbas Shobeiri
825 NE 10th St., Ste. 3400
Oklahoma City, OK 73104



Dear Dr. Shobeiri,

My name is Karyn and I’ll be travelling from MA to meet with you on January 18, 2011 for a PNE Decompression surgical consult. A tentative surgery date has been scheduled for January 20, 2011.

I have been informed by your office staff that you don’t speak with patients over the telephone, so the reason I’m writing to you in advance is because I have concerns regarding one of the areas of my entrapments as indicated by the 3T MRI which I had at the Hospital for Special Surgery in NYC, NY by Dr. Hollis Potter. While this condition as a whole is cause for concern, I’m specifically referring to:

“MRI of the pelvis demonstrates pelvic floor scarring of the surrounding perivaginal fat planes, entrapping both the anterior and distal branches of the pudendal nerves, as well as the dorsal nerves, bilaterally, left greater than right”.

“There is scar surrounding both dorsal nerves to the clitoris”.

It has recently come to my attention that dorsal nerve decompression isn’t something that’s typically addressed during TG surgery. Is this true? With your vast pelvic anatomy knowledge, is this something you may be able to help me with?

I’ve researched this matter to the best of my ability and have only come up with two doctors who do decompress the distal dorsal branch of the Pudendal nerve after it branches out of the Alcock’s Canal all the way to the Pubic symphysis:

Dr. Lee Dellon – The Dellon Institutes for Peripheral Nerve Surgery
Baltimore, MD
Telephone: 410-337-5400
Email: aldellon@dellon.com

Dr. Oskar C. Aszmann – Allgemeines Krankenhaus
Währinger Gürtel 18-20, 1090 Wien, Austria
Telephone: +43 1 40400 6986
Email: oskar.aszmann@meduniwien.ac.at

As it is my sincere hope to avoid another surgery, I was wondering if you’d be willing to contact any of these surgeons for direction in the event you’re not familiar with the procedure to release the dorsal pudendal nerve.

Dr. Mark Conway of Merrimack, NH informed me that he would contact you personally to discuss my case. He also said he would offer to provide you with the images of my MRI. I don’t know if you have been able to connect with him or not. It is my intention to bring a copy of the CD images with me to our scheduled appointment.
Thank you very much for your time and consideration. I look forward to meeting with you on the 18th of January!


I really don't want this to be a debate about if he read my letter or not. I think we all know the answer to that question. ;)
I am wondering, though, about that pelvic floor! I would honestly question myself if I got a recent "no tightness" in September from Dr. and then a "tighter than a drum!" from Dr. S a couple of months later, EVEN THOUGH I FEEL ZERO TIGHTNESS ... IF it weren't for the fact that I also went back to my PT around the same time as I saw Dr. C; who became intimately acquainted with my pelvic floor. Her assessment was the same as Dr. C's and that matches what I feel (or don't feel). In an effort to give Dr. S the benefit of the doubt, maybe a "scarred pelvic floor" feels tough and fiberous?
I welcome any thoughts ....
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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Violet M
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Location: United States
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Re: Pelvic Floor Scarring

Post by Violet M »

Karyn, it's my understanding there can be bands of tight tissue that can be felt via the vagina but wouldn't you have had those 2 months ago also?
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
scaredgal
Posts: 153
Joined: Tue Nov 30, 2010 3:24 pm

Re: Pelvic Floor Scarring

Post by scaredgal »

Here's my thoughts after years of PT with SIJD. After over 10 PT's (supposedly experts in SIJD) and this is prior to PN:

Loose ligaments contributing to PT - strengthen glut meds/glut max, transversus abdominus, pelvic floor (via kegels), multifidus
No, you don't have loose ligament
Advised to do prolotherapy
Advised to strengthen glut meds with exercise until I had tingling from the SI joints for 6 months due to pain from the exercises
Continue to run
Don't continue to run
Strengthen with squats/lunges
Don't strengthen with squats/lunges
Do Pilates
Do Yoga
Stretch, stretch, stretch.
Tightness in the piriformis
Tightness in the obturatus internus
Internal PT - which finally did me in - I'd kill the PT if I could- she put me where I am today

Anyway, to make a long story short - it seems like the more we seek help, the farther our search for help goes. No one knows any definite answers about the darn pelvis and it's pain. So I'm not surprised that we have all been led down this path of every doctor not listening, having different theories, playing like we are their darn guinea pigs.

Don't you all just wish we had something simple like a darn heart attack? This stuff won't even kill us unless we do ourselves in.
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