My experience so far

[Ikarus-70]

Hi,

my Story in short:
- slowly beginning pain in the left side of the penis, March 2017
- escalation with horrible pain attacks in August 2017 - starting multimodal pain therapy
- since then expanding to the whole pudendus area, but lower intensity overall
- my state now: 1x150mg Lyrica + 1x 30mg Mirtazapin, massage, pelvic floor therapy. Pain is acceptable on some days. Whatever, I still want to live and fight on. It has been worse before. My Life attitude has changed and parts of it even better than before.

What helps for me at most: Biodanza! (use google...)

For me, movement relieves pain, the wilder, the better! But actually I am a lazy guy. So the disease is even good for something, because it tells me: move your body!

Where I have been so far:
- Schmerzpraxis Brons in Leer/Ostfriesland;
very workative Doctor, she never runs out of ideas. She has sent half a dozen physiotherapists of
different schools onto me, gave injections in back and belly, acupuncture, Lyrica, Opiate, anti depressant, massage, sent me to urologist.
But there was no breakthrough. I am still fighting a phantom. But nevertheless I stay there for treatment, I trust the doctor, but I also look for other possibilities.

The Rest of the list see here:
http://www.pudendalhope.info/forum/view ... =84&t=9031

[Ikarus-70]

Hi,

I have been to Dr. Bodner and Dr. Aszmann in Vienna.

Now I have a complete diagnosis, an explanation where all this comes from (for my special case only!), a therapy plan and a realistic view what I can expect.
So I really advise to go there.

Extremly helpful for diagnosis were the MRI from MR-Neurographie Universität Heidelberg.

[Violet M]

Sounds like you feel they have given you the correct diagnosis. I wish you all the best with your treatment plan and I would be interested to hear how it goes for you. Will you have to do a lot of traveling?

Violet