Can Pudendal Neuralgia start like this? In pain for 6 months
Posted: Mon Jul 30, 2018 3:16 pm
Hello everyone...
I have all kinds of symptoms that developed within a few months and lead me to look up more about Pudendal Neuralgia. I am still puzzled if Pudendal Neuralgia actually develops in the way that I will describe in this forum post.
So it all started with a surreal experience inside my penis. First I just had some sharp stinging pain in my glans, but a week later while having an erection a vibrating shockwave went through my shaft from top to base, followed by what I think was an inflammatory sensation (like buzzing, if something was moving quickly around the area and length where the shockwave had been).
I went to a Urologist but he couldn't make any sense of it. I could only explain what I felt, but could not tell the exact location other than inside my penis shaft. It felt like the shockwave went through the center, but the Urologist thought it would be more likely through the urethra, but still could not explain what the shockwave sensation could have been (if you read this and have an idea, please leave a comment).
In this phase, the buzzing developed into a continuous pain what was still manageable by taking paracetamol. But a few weeks later the pain became excruciating and I developed also a pain in my perineum and sitting became very uncomfortable. I was given Gabapentin for at nighttime and this seemed to help reduce the pain to a level that I could fall asleep. A CT scan was made to rule out stones and although my urinalysis showed no bacteria I was prescribed antibiotics for possible prostatitis.
In the period that followed, I got pain in the rectum and tailbone and I felt some kind of electric current sensation running a little left from my perineum to the anus.
The pain became unmanageable and I was given Tramadol and Amitriptyline and experimented with various doses for pain relief. I had a period where I could not find relief and have seriously thought about suicide. Never thought life could be this miserably...
I did a 2nd opinion with another Urologist and he thought of neuritis if it is nerve related or urethral syndrome if related to the urethra.
I have most relief when lying down on my back or sitting on a toilet seat. I have no pain when urinating. Pain is minimal upon waking and increases during the day.
I am extremely fatigued living months like this now. The Urologist got me on the waiting list for seeing a neurologist.
The last few days, I felt a little less pain after months of struggle. Hopefully, that is some good news.
Some questions:
Can Pudendal Neuralgia start like this in the way my symptoms and pain progressed?
What are important questions to ask when seeing a neurologist?
Would a neurologist be able to use pressure points to find out if this is nerve related?
Any other advice you can give me?
Thank you in advance for reading and also for any replies,
Grifin
I have all kinds of symptoms that developed within a few months and lead me to look up more about Pudendal Neuralgia. I am still puzzled if Pudendal Neuralgia actually develops in the way that I will describe in this forum post.
So it all started with a surreal experience inside my penis. First I just had some sharp stinging pain in my glans, but a week later while having an erection a vibrating shockwave went through my shaft from top to base, followed by what I think was an inflammatory sensation (like buzzing, if something was moving quickly around the area and length where the shockwave had been).
I went to a Urologist but he couldn't make any sense of it. I could only explain what I felt, but could not tell the exact location other than inside my penis shaft. It felt like the shockwave went through the center, but the Urologist thought it would be more likely through the urethra, but still could not explain what the shockwave sensation could have been (if you read this and have an idea, please leave a comment).
In this phase, the buzzing developed into a continuous pain what was still manageable by taking paracetamol. But a few weeks later the pain became excruciating and I developed also a pain in my perineum and sitting became very uncomfortable. I was given Gabapentin for at nighttime and this seemed to help reduce the pain to a level that I could fall asleep. A CT scan was made to rule out stones and although my urinalysis showed no bacteria I was prescribed antibiotics for possible prostatitis.
In the period that followed, I got pain in the rectum and tailbone and I felt some kind of electric current sensation running a little left from my perineum to the anus.
The pain became unmanageable and I was given Tramadol and Amitriptyline and experimented with various doses for pain relief. I had a period where I could not find relief and have seriously thought about suicide. Never thought life could be this miserably...
I did a 2nd opinion with another Urologist and he thought of neuritis if it is nerve related or urethral syndrome if related to the urethra.
I have most relief when lying down on my back or sitting on a toilet seat. I have no pain when urinating. Pain is minimal upon waking and increases during the day.
I am extremely fatigued living months like this now. The Urologist got me on the waiting list for seeing a neurologist.
The last few days, I felt a little less pain after months of struggle. Hopefully, that is some good news.
Some questions:
Can Pudendal Neuralgia start like this in the way my symptoms and pain progressed?
What are important questions to ask when seeing a neurologist?
Would a neurologist be able to use pressure points to find out if this is nerve related?
Any other advice you can give me?
Thank you in advance for reading and also for any replies,
Grifin