Health Organization for Pudendal Education

Hi. I haven't been on this site for quite some time. I vaguely remembered an article about, I believe, a Dr. Fuller (I forgot his full name) who had patented an MRI for diagnostic and therapeutic purposes of pudenendal neuralga. I can no longer locate this individual in this forum. Can anyone direct me. I reside in Wisconsin; the pain clinics and internal medicine "doctors" are horrible here. My internist in Illinois is retiring at the end of the year and has not given me any choices. He said he doubts anyone will take care of our pain issues, i.e., continue with our pain meds. The internist in WI wrote us off - the didn't even address my husband's heart in which he takes medication. The pain clinic "physician" would not even see me. I just contacted the pain clinic that I went to about 18 years ago and they said I have to have another more recent MRI (last one they didn't know anything about pudendal neuralgia - that's even if I have it. I also have to have an abdominal CT. I've had chronic pelvic pain for 20 years. I apologizing for this long message and ranting. Its just that we're in extreme pain and cannot get help anytime soon. So... if anyone knows about Dr. Fuller, would you please direct me? I'd be most appreciative.

Hi JAT,

I'm so sorry to hear about the problems finding good doctors. I don't have any info on Fuller's MRI protocol. Maybe someone else does, though. I do remember reading about that doctor in some of the older posts. MRIs are not considered that useful for diagnostic purposes because there are so many false negatives. But, when patients do them, many of them request that they be done following Dr. Hollis Potter's protocol. She's a radiologist in NYC who developed a protocol for zeroing in on the pudendal area with an MRI, and she shares it with others. I got that protocol from their office (over email) and then asked my pcp to order me an MRI at a place (in a neighboring city) that had a 3T MRI. My pcp and I both sent the protocol to the MRI place in advance and asked them to follow it. I learned from them that the radiologist and technician had to do homework (their words) to figure out how to do it and that there were a few images that they could not do. But, I think they did a good job. The radiologist identified edema between my ST and SS ligaments that was suggestive of pne. My symptoms were the most important for diagnosing the problem, but the MRI added a little bit of support to the diagnosis. You can email Potter's office and get it, or I could send it to you. Just pm me with your email address, and I can forward it to you.

April

Just for clarity the Dr is Dr Filler, you can search for Filler in the search box at the top right corner of the forum, although Dr Potter's protocol is used very often as April said.