Health Organization for Pudendal Education

This is a one-page fact sheet on pudendal neuralgia, pudendal neuropathy, and pudendal nerve entrapment that you can print out to give to your health care provider. There is one on color letterhead or one on grey letterhead.

Thank you!

Thank you! Thank you!
I especially appreciate you adding the line about warning patients of the potential risks of nerve blocks. Before I found this forum and because of the way these were decribed to me by the ordering Doc, I expected a full recovery after receiving them. I couldn't imagine what was wrong with me now, after suffering such a long, horrific pain flare!

Dear Karyn,
Welcome to the club!We should thank Dr. Quesada for his nerve blocks which is making so many of us worse.My case is very similar to yours.I had no sitting pain like youself before the PN blocks and developed it right after my bilateral Nerve blocks with Dr. Quesada.

I have numerous sessions of PT,Surgery with Dr. Bautrant more than a year but the sitting pain that I developed in 2007 after his bilateral Nerve blocks never went away.

Kind Regards,
Ali

Hi Dear Ali,
The "sit bone" pain I developed after my second round of blocks is just the cherry on top of my cupcake. I always had excrutiating pain with sitting. Just not with the sit bones.
I wasn't even aware I had sit bones prior to the blocks. I do agree that people need to be aware that patients may experience long lasting adverse effects from the blocks, though, lasting from several days, to several weeks to months.
Warmest of regards,
Karyn

Hi guys,

Glad you like the forum.

Could everyone please post comments about nerve blocks in a new thread so that we don't turn this thread into a nerve block thread? Thanks,

Violet

RE: Blocks (can be harmful and cause flares)

So what do you do when a PN doctor requires blocks as a diagnostic tool prior to surgery? I read Houston's requirements before they will consider surgery, and I believe Hibner requires blocks (up to 3) even though only the first block is used to make the diagnosis.

The good news is, flares don't last. It's unfortunate that they happen, but for now the thinking is that it really is worth trying them to get relief to see if you can avoid any further treatment.

The fact sheets have been modified slightly to state that we are now a tax exempt organization. I replaced the old fact sheets in my original post at the beginning of this thread.

Thank you Violet, this is tremendous news.