Health Organization for Pudendal Education

I'm sorry Sunil

With my neurontin brain, I never tell anyone I am praying for them unless I say a prayer right then and there, because I forget so many things. So I just wrote "Sun" on my hand in permanent ink; now I will remember to keep praying for you until I have washed my hands many, many times. So when you come back and read this you will know you are still covered in prayer!

Primarily my prayer for you is that God will show you how to have peace of mind. I have found this in my own life to be even more precious than physical healing.

Sunil,

If it matters to you at all, I pray for you by name every day.

A's Mommy

You are never alone.

sunil wrote:It's hard to have peace when you are rejected a lot. But I also think as my body changes and adapts I feel unsure and unsteady in myself, it's all new to me this feeling.

You can only have peace with God who will never reject you; man will let you down sooner or later.

About your body changes: Just to let you know, because of SIJD I had a much longer right leg and put most of my weight on that side, and have a strong inflexible right side and a weak flexible left side. I was PM'ing someone on this board several months ago, about how I had no musculoskeletal pain through all the years of pelvic pain, but now that my body had to adapt to "normal", I got out of bed with aches and pains feeling like an old lady every day. Not sure of the time frame but I am thinking this was a good 6 - 9 months after the SIJD was corrected. Well now I am 14 months out, and I was emailing somebody else on this same subject, and suddenly realized that my body has finally adapted to normal and I have no more aches and pains. I don't remember when it stopped, it must have been gradual and I wasn't really thinking about it. But I suddenly realized, it has been quite a long time since I woke up feeling sore. I hope that helps you have some perspective on how long it takes to adapt. probably more than 6 months but less than a year, if my experiences were typical.

I'm so touched by your posts (HM & AM) to Sunil. I thank God for this forum.

Thanks, Sunil, for your update. As I type, I sit on my lovely TheraPearls U shaped ice pack. Always remember, this is your community where you should and can feel safe. So whenever you need to vent, just let it all out. There are many others all over the world who are with you in suffering.

Have you checked out my blog? I try to expose the reality that this disease has caused in my life. I pray it is both eye-opening and a blessing to others.

God bless,

A's Mommy