28M suffering PGAD symptoms for 2 weeks

[Kendis]

Hi,
It started suddenly on bus ride, on september 17th in the morning. Hasnt stopped since. I feel an itch or sudden feelings of being near orgasm randomly during the day. I do not have priapism, my penis is never erected. Orgasms dont relieve the feeling, only for a second, and I get them almost right away again. Nothing helps. After orgasm I get feeling of swelling/pa ok n/burning between penis and anus, doesnt feel like intestines or bladder. I suspected prostate at first, but then I looked up and there is dorsal and pudendal nerve located. I feel itch on dorsal nerve, first half of penis, from the root side, not the head. After masturbation, pain moves inside where prostate is.
Not sure what caused it, but my assumptions are:
1. I have had IBS for year and 3 months now, despite 100 tests and scopies done cause is unknown. It started however after me drinking kefir from unpasteurized cows milk. IBS has been pretty flared up for last couple of weeks. I was "filling" pretty quickly days before PGAD, but was not going to toilet as I should have been. Could holding poop cause it?
2. Have been taking prostakan forte which has saw palmetto in it, for couple of years. Discounted it week ago, no change. Can it be cause?
3. Have been treated for acid reflux with Ozzion for approx 6 months.discounted it week ago,no change.
4. I fall from time to time. I sometimes fall from my chair, can PGAD start after a few days or weeks after fall?
5. I might remember hurting my head by accidentally "bashing" it on the wall? From the back, another cause?
6. I have had bacterial urethritis for 2 years, antibiotics didnt help really, one bacteria disappeared but another one popped up. I have taken one autovaccine at first which helped, but another bacteria appeared. Now im taking another autovaccine and i have been taking it for 2 months (you take it for 9). I always had sterile pee, but I visited GP week ago due to PGAD symptoms and also urologist. GP took urine sample and found out that I have ecoli in urine. Never had UTI before.
Could Uti triggered those symptoms? I take antibiotics now, macmiror, im on 5th day. I see no effects in PGAD symptoms.
7. I was on SSRI and Benzo for 8-9 months. I stopped very slowly in august 2018. Could SSRI caused it after 12 months? I hears of cases where ppl got it after SSRI, but that was after stopping them cold turkey, and usually immediately.
Now, since I went slowly and this is 12 months later, its not very likely,right?

I am suffering very much, it threw me into depression, I cannot concentrate, function, i am on constant verge of orgasm and in inappropiate times and I cannot even find a job right now because of this. Problematic for me is even going outside of house. Its also painful, if i do or dont masturbate,its judt that it hurts at different places.


I am visiting Urologist again during this week and also neurologist, what tests and things should I ask for please?
MRI of brain and pelvis?
What else please?
Thanks

[Violet M]

Hello Kendis,

I am sorry you are suffering so much from this. I understand how difficult it can be.

I can't say for sure what is the cause for you but you have listed several things that can possibly be associated with causing pudendal neuralgia, or PGAD due to pudendal neuralgia; including a UTI, falls, the many scopes you have had done, and if you are chronically straining from constipation due to IBS. It could even be a combination of all of those things. Regarding the SSRI's it seems like maybe that was too long ago to be what triggered PGAD but I could be wrong.

MRI of the pelvis, lumbosacral area, and lumbosacral plexus would be important to rule out any obvious problems. Since you are having frequent falls I think the brain MRI would be a good idea too. If you can get a referral to a PT who specializes in pelvic pain that would be something you could request. You can read the following link for more information on the diagnosis of PN. http://www.pudendalhope.info/node/69

I don't know what country you are in. Are you able to travel to see one of the pudendal neuralgia doctors?

Violet