25 old woman from Slovenia, pn? Help

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Barboletka
Posts: 3
Joined: Wed Dec 18, 2019 11:11 am

25 old woman from Slovenia, pn? Help

Post by Barboletka »

Hello,
My name is Barbara and I'm coming from Slovenia. Sorry for my english, because it's not my first language :)
I will share my story and I need help, because nobody believes my pain and frustrations...

On August 9 2019 I went to chiropractor for full body alignment... she rotated my spine so I was in so much pain For over a month

On September I went to someone who will align me back, but than it all went down... my scapulas went out, my neck was rotated and i was suffocating because muscles were wrong. And all my body hurt.

On October 20 I started cranio-sacral therapy and I can say upper body is better fo 70%. In mean time me and my boyfriend had sax in the car :oops: and I think there something went wrong, maybe some move with my hips or I dont know, because next day I had feeling like my anus will fall out or that something is inside. I told my therapist and she said the problem is with my sacrum S2,S3 and position of my pelvis and sacrum and even my lumbar spine. So she did therapy (from october till now I am going twice a week on this therapy) and I had pain while passing gas or bowel movement and pain in perineum and all the way to coccyx. But I could sit normal and having sex...

2 weeks ago We went to the pool for a swim, but all I did was walk, I didn't swim...than I was cold and got uti and my ischiatica on right side started to hurt. In next days my vagina started to hurt too, got some tingling and crawling sensations from anus to vulva, on the side. But we couldn't have sex, it hurts. I thought I have vaginal infection so I treated that. And still going to the cranio sacral therapy I told the problem and she said its because of my muscles and till than I found out about pudendal neuralgia, so I told her and she said that it is not damaged but it is trapped. But I don't know if I should believe her or not?
After therapy 1 week ago I got burning in my vagina and clitoris and up, and the feeling I have urinary infection and I need to pee all the time and my bladder hurts on the touch in abdomen, and when I pee it is a feeling like i can't squeeze enough, sometimes. Went to doctor and even with negative urine she gave me antibiotics, so i ate those... nothing better. I told this to my cranio sacral therapyst and she said it is all because my weak pelvic floor muscles and not aligned lumbar and sacral part and pelvis and that she will help me. On this monday I had therapy and she worked on my pelvis and sacrum and than started to burn even in my lower legs and feet, why?
Doctors dont believe me, paracetamol and diclofenak (naklofen) dont work. I will go to neurologist, but now are holidays so after new year. :(
I dont know what to ask my doctor for pain, because nobody believes me that something is wrong. It hurts wen sitting and lying, pain and like some ball is in my anus, and than burning around my vagina and clitoris and legs and feet. Standing is a little better but vagina still burns. I cant sleep, a little helps if i got pillows under my thighs but still feeling if ball in rectum and burning vagina. We dont have sex and even he doesn't want to try, because he doesn't want to hurt me.

Why is getting worse even if I go to this therapy, it wasn't this bad till now. Can somebody help me what to do and if this can be treated. Will craniosacral therapy help? What pain medications should I ask from my doctor and what should I do. I didnt find any success stories here and I am scared this will stay all my life and i will not have pleasure of having sex and I will never work as a veterinarian. I am very depressed and I am losing hope. :(

Barbara
April
Posts: 662
Joined: Fri Jun 19, 2015 9:59 am

Re: 25 old woman from Slovenia, pn? Help

Post by April »

Welcome to the Forum, Barbara. You do have many of the pn symptoms. Does your physical therapist specialize in pelvic pain? If so, she may be able to help you with the diagnosis and recommend doctors who are knowledgeable about pn. A nerve block can also help with diagnosis. Amitriptyline is a common medication for this, so you could ask your doctors about that.

April
Oved1984
Posts: 1
Joined: Mon Mar 23, 2020 6:44 pm

Re: 25 old woman from Slovenia, pn? Help

Post by Oved1984 »

hey there Barbara, just wondering how you're doing by now? there's my wife suffering from very similar symptoms and i was wondering how are you doing by this time? we've already forgot about recipes with cottage cheese. anyway, we're doing good.
thanks for the recommendations on the next post, will definitely check what we can do.
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