23M Dr. Conway or Dr. Potter

[somewhereoneday]

23M been experiencing Pudendal Neuralgia symptoms for 4 years. Evaluated by Dr. Conway recently. He will not order a pelvic MRI, he says there is no data for it. However browsing on here and learning more about Dr. Potter's algos and her complete MRI work up I feel this is what I need. I've seen two chiropractors mentioning misalignment in the pelvis, I went to an orthopedic for x rays for groin and hip pain, and they told me," if your physician isn't managing your care, you may need to find someone else ". and within the x rays, they did not get the top of the SIJ Joints, because it needs to be ordered specifically.

So anyways this is a post I found on here, and it seems vital to know that there is data to support PNE, before I get a life altering surgery that may potentially destabilize my sacrum even more, by cutting ligaments. I've seen two pelvic floor physios and I wasn't even assessed for a crooked pelvis, or given any exercises to correct muscle imbalances I do clearly have, which were pointed out, tight right adductor and stronger left abductor and difference in glute size to say the least. Everyone is so compartmentalized. How can this not be relevant to support a surgery. I finally find the person that can diagnose me with PN/Neuropathy, but all he's willing to do is a lumbar MRI. I have no hope for our medical system, I have been managing my care since day 1 and now am looking to pursue more physical therapy in regards to a twisted pelvis, lateral pelvic tilt, which 2 pelvic floor therapists, an orthopedic, 2 urologists, a physical therapist with 2 decades of experience, and no one can tell me what's going on structurally. Twisted hips = twisted pelvic floor. I would seriously love to talk to an admin, to introduce people to PRI, Postural Restoration Institute, Left AIC Right BC Pattern that actually demonstrates pelvic torsion and systematically throughout the body. I will be doing online consults soon with a PRI trainer that knows the pelvis very well, I'm giving Pelvic floor physio one more shot, and if she doesn't address SIJ Dysfunction with exercises and adjustments, I'll be searching for the 10th chiropractor that actually has an answer and explanation for this, as I already have an abstract notion of what's going. Ischiocavernous muscles spasm when the pelvis is torqued and for men, its the worst chronic condition playing "visual" mental games everyday.

This is the post I wanted to share, I'm sorry admins I don't know how to reference this post. Thank you for this website.

Results from 3t MRI from Dr. Potter: feedback appreciated!

Postby John1089 » Fri Aug 30, 2013 11:40 pm
Hey guys. So just to clarify, my main complaints are numbness/lack of sensitivity in the shaft and glans of my penis. Pain is not much of an issue.

Most of the findings were normal, but here is an excerpt of the report which details potential problems:

"The sacrospinous and sacrotuberous ligaments are symmetric. There is no entrapment of the pudendal nerves within Alcock's canal. There is mild asymmetry of the levator ani muscle. There is asymmetric scarring of the right superficial transverse perineal muscle which may cause entrapment of the inferior perineal branches of the pudendal nerve distribution."

Another small problem was "coccyx is minimally deviated to the left". Could that be causing pelvic floor problems?

There is some other stuff, such as mild hip synovitis and possibly postural related inflammations, but above is the details on the pelvic floor.

My main question: could this asymmetric scarring of my superficial transverse perineal muscle cause entrapment of the dorsal branches of the pudendal nerve leading to my penis? (causing numbness etc..) My urologist (who is not very familiar with the 3t mri and these results and wants me to follow up with dr. potter) said that entrapment of the inferior perineal branches would only cause problems in the lower anal area, of which I have none.

The end of the report notes that there is also "no scarring identified along the course of the dorsal nerves to the penis". So that was encouraging. But still, I feel like Im left in the dark about what may be causing my problems of numbness/decreased sensitivity? Maybe it is too small to pick up on an MRI/MRN?

Anyways, I will be seeing Dr. Potter sometime within the next two weeks to get further clarification/recommendations, but in the meantime, what do you guys think? Has anyone had success with dissolving internal scare tissue without surgery?

Thanks!

[April]

Hi somewhere,

An MRI is a good idea to rule out certain things, and sometimes (though it's rare) something shows up on the image that is indicative of compression. My first one showed nothing, but my second one (done 1.5 years later and on a 3t MRI with the Potter protocol) showed edema on the left b/t my SS and ST ligaments, which matched my pain. I had my pcp order it for me. I gave her the protocol and gave her the address and info on an MRI place that had a 3t machine, and she sent it in with the request to follow the protocol. If you pm me with your email address, I'll email you the protocol.

April

[jaxi123]

How can internal scar tissue be dissolved.

[riemann]

any updates to the tilted pelvis? I was wondering if I should try to get in contact with Dr. Potter, since I have similar symptoms (penile numbness for 6 years) and in desperate in of a diagnosis.