Hallo

[janneke]

I will introduce myself. I am a 64-year-old female from the Netherlands and a medical technician. More than 1 year ago I was operated on a kidney tumor. It turned out not to be malignant, but the tumor was gone and the surgeon searched for an extra 2 hours to find the tumor. When the anesthesia and anesthesia disappeared I suffered from pain while sitting and lying down. In the pelvic floor and in the abdomen. After a long search, I think it is Pudendus Neuralgia. I stand all day because sitting hurts and eventually gives stomach ache. With all other symptoms, such as urge to urinate and genital sensations. And I get a tight band around the aperture. Now I'm unable to work. My question: Why do I get a stomachache? Is this phenomenon associated whit the P. Neuralgia???
Thank you, Janneke

[sadie]

Jan,
Hi welcome welcome so sorry u r having such horrible symptoms. i am asking a few Pudendal Neuralgia sufferers
" veterans" about your story. When I hear from them I will get back to you.

Meanwhile you may want to sign a medical release form from your doctor, which is what I tell pretty much everybody who's new at this game . ... to gather all their pre-op and post-op information, so it can be reviewed to see if there's anything that's in the doctor's notes, that wasn't told to you verbally. Having these records will enable you to formulate better questions for that doctor, or for the doctor you're going to hopefully in the future for a second opinion.
These records are always good to have from every doctor you visit . So, if there were any general practitioners , or specialist that you saw prior to surgery you may want to ask for their office notes also. These can be scanned into your computer so you are not knee deep in paper . These records are always great to have if you're seeking a second opinion, and will document any complaints you have about the surgery so that there is a paper trail of sorts.

Because so many of us are told by medical professionals that this is in our heads it's always good to have it in writing. I will get back to you as soon as I hear something from my friends which I emailed about your post . Hang in there so sorry you're going through this. Since you are new to The Forum you may want to go up to the right on this pg, to the search bar and put in the country you are from to see if there are any doctors in your country who specialize in pudendal neuralgia so you can get a proper diagnosis. Sadie

[corey3RM]

Hello and welcome.

[sadie]

janneke
hello ...I talked to a PN vet as promised, and then searched kidney surgery on line to see just how its all connected and besides what I suggested in the first post I made ( about gatherings your operative notes etc to see what happened during the 2hours that the surgeon looked for a tumor that he could not find)….I am not sure I can add anything else but would like to hear how you are doing after all is said and done …. I hope the suggestions in that 1st post helped and if you find anything interesting in your notes and or via a second opinion from another surgeon let us know. I have had PGAD for 10 years now and I know how important having others to listen is . Blessings Sadie