Hi, I have had Pudendal Neuralgia/PNE for 1 1/2 years now, which has caused various problems for me in the past, and most have gone now except for the pain and occasional urinary urgency. I have a lot of knowledge with all kinds of different chronic and acute pelvic pain problems and symptoms such as Pudendal Neuralgia, Pudendal Nerve Entrapment, Piriformis Syndrome, Sacroiliac Joint Dysfunction, Chronic Non Bacterial Prostatitis, Lower Spinal Back (Lumbar), Genital Pain, Pelvic Floor Dysfunction, IC, Urinary Burning, Urinary Urgency/Frequency, Pelvic Pain, Perineum Pain, Constipation, Urethral Burning, back pain, and treatments, tests, and doctors to see for these problems from my experience, talking with doctors, patients and research. I work from home, so if anybody wants to call me at any time, male or female, please fee free to private message me here any time day or night I love to help people and do not mind at all. My advice is no substitute for talking with the correct doctor to help you, but I will also recommend which kinds of doctors and tests I think can help you based on your problems. There's Always Hope.
Shawn Ellis
If Anyone Needs Help Advice for Pelvic Pain Im Here For You
- shawnmellis
- Posts: 227
- Joined: Sat Dec 04, 2010 8:42 pm
- Location: Concord, NC USA
- Contact:
If Anyone Needs Help Advice for Pelvic Pain Im Here For You
Last edited by shawnmellis on Sat Sep 03, 2011 5:07 pm, edited 1 time in total.
Bringing Help Awareness Education to Patients & Doctors about PNE through Videos at http://www.YouTube.com/PudendalNerve & PudendalHope.com Please tell Dr. Oz to cover topic of PNE by going to http://www.doctoroz.com/contact Started 1/2010. Initial urinary tract infection in 1/2010. Medication: Diazepam, Tramadol. 4 nerve blocks. physical reinjury 8/2010. 7/2011 Potter MRI Varices dorsal branch 8/23/11 Diagnosis Entrapment of Dorsal Branch Dr. Lee Dellon There's Always Hope!
Re: If Anyone Needs Help Advice for Pelvic Pain Call Me Any
Hi Shawn,
Very kind and selfless of you to make this offer to fellow chronic pain patients! There's been a time in our lives that we all need a life line to hold onto!
Warm regards,
Karyn
Very kind and selfless of you to make this offer to fellow chronic pain patients! There's been a time in our lives that we all need a life line to hold onto!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
- shawnmellis
- Posts: 227
- Joined: Sat Dec 04, 2010 8:42 pm
- Location: Concord, NC USA
- Contact:
Re: If Anyone Needs Help Advice for Pelvic Pain Call Me Any
Karyn, I agree, I needed a life line to call last year when this all started, and I thought it was my doctor, but when I called them, some of them literally just told me to take Ibuprofen, or nothing at all and some of them just hung up the phone on me without saying anything or even goodbye, so I know what people suffering with this in the beginning feel like.
Shawn Ellis
Shawn Ellis
Bringing Help Awareness Education to Patients & Doctors about PNE through Videos at http://www.YouTube.com/PudendalNerve & PudendalHope.com Please tell Dr. Oz to cover topic of PNE by going to http://www.doctoroz.com/contact Started 1/2010. Initial urinary tract infection in 1/2010. Medication: Diazepam, Tramadol. 4 nerve blocks. physical reinjury 8/2010. 7/2011 Potter MRI Varices dorsal branch 8/23/11 Diagnosis Entrapment of Dorsal Branch Dr. Lee Dellon There's Always Hope!
Re: If Anyone Needs Help Advice for Pelvic Pain Call Me Any
Thanks Shawn that's a very kind offer I might take you up on it sometime. 
