Gettin' Embolized

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
Post Reply
donstore
Posts: 463
Joined: Mon Nov 08, 2010 6:13 am
Location: San Francisco

Gettin' Embolized

Post by donstore »

Saw an interventional radiologist at UCSF last Friday and he has pretty much agreed to embolize the bilateral varicoceles that Dr. Potter said were impinging on my ilioinguinal nerves. He said that MRI was not the best test for varicoceles and that a scrotal ultrasound would be more diagnostic and he would order one up for me. FYI - varicoceles are similar to varices but are specific to the scrotum and swell due to backflow from defective valves. He told me that if the veins were large enough to embolize that he would go ahead and do so. He initially was of the opinion that varices could not impinge on nerves (a view also held by the urologist who referred me) but I pressed my case and he eventually came around. For me, this is just another example of how you have to constantly sell your point of view with this condition. And of course I had Dr. Potter's report to back me up. This won't address the scar tissue around my rt STL that is surely the culprit in my sitting pain but who knows, it may help out with the scrotal aching.

Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
User avatar
helenlegs 11
Posts: 1779
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: Gettin' Embolized

Post by helenlegs 11 »

Hope it works out,don. There is so much about varices etc on scans it seems they have to have an involvement.When will you have the procedure for that? Fantastic that you stuck to your guns and persuaded the doctor to your way of thinking, it's all a bit of a learning curve for everyone so it's good that he listened. This could be another option for treatment for others too. Everything crossed for you.
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
User avatar
Violet M
Posts: 7158
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: Gettin' Embolized

Post by Violet M »

Good luck with this procedure, Don. I hope you are on the right track and will receive some relief soon.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: Gettin' Embolized

Post by nyt »

Good luck Don!! Please keep us updated on how you do. Prayers are sent to guide the physician's hands.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
donstore
Posts: 463
Joined: Mon Nov 08, 2010 6:13 am
Location: San Francisco

Re: Gettin' Embolized

Post by donstore »

Thanks everyone for your good wishes. My ultrasound is on Sept. 30 and I heard today that they wanted to go ahead and schedule the embolization so it looks like things are rolling along in this area. The interventional radiologist told me that if the varicoceles are a component of your pain that post-op relief is usually immediate. We'll see.

Don
Mild to moderate PN for 5 plus years, pain controlled by lyrica and opiates.
Nerve block (unguided) 9/10 Dr. Jerome Weiss - sciatica for 5 months but got numb in painful perineal/scrotal area - he diagnosed entrapment - but no more cortisone for me
Potter MRI 5/11 - rt STL entrapment of PN at Alcocks
Consult with Dr. Hibner Feb. 2012
Bilateral inguinal hernias diagnosed by dynamic ultrasound - surgery on 6/20/13
Feeling a little better, a few more months will tell
Post Reply

Return to “CAUSES & EFFECTS OF PUDENDAL NEURALGIA”