Page 1 of 1
Pain pump I.e. intrathecal drug pump for PN?
Posted: Sun Jan 29, 2012 6:54 pm
by Christopher
Has anyone here tried a drug pump?
I am correctly looking into it...
I'm interested in finding out:
1) did it help you
2) if so, how much
3) where did they out your drug catheter?
Christopher
Re: Pain pump I.e. intrathecal drug pump for PN?
Posted: Sun Feb 05, 2012 5:17 am
by Violet M
I know someone who had transverse myelitis who is having good results with a prialt pump. She has a lot of symptoms similar to ours but her problems are in the spine, not the pudendal nerve.
Re: Pain pump I.e. intrathecal drug pump for PN?
Posted: Sat Mar 10, 2012 8:41 am
by larry91555
I had a pain pump put in post surgery as I was so desperate and the American docs just didn't know what to do. I can tell you it was a huge mistake. Not only did it not work to control the post surgical pain but (although a rare side affect) due to the medication or some other 'unknown' reason a tumor grew at the tip of the catheter causing me serve spinal damage and another very painful surgery to take the tumor out. It also cost me the use of my right leg below my knee and the use of my right foot which I can no longer move. Although, fully recovered (100%) from the pne surgery the pain pump was the biggest mistake I made along the way.
Re: Pain pump I.e. intrathecal drug pump for PN?
Posted: Mon Mar 12, 2012 2:48 am
by carolynm
My PM doc won't do it until I've had a failed surgery.
Nerve pain doesn't always respond to narcotics. Mine does not. So an intrathecal pump of morphine, etc would not help me.
cm