Is it possible to differentiate PNE from PN from symptom?

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
Post Reply
Lex1
Posts: 23
Joined: Sun Feb 19, 2012 7:01 pm

Is it possible to differentiate PNE from PN from symptom?

Post by Lex1 »

Hi everyone

New member here, learning lots about my condition, especially from the forums so thanks.

Do any of the more experienced sufferers know if there are any symptoms more suggestive of PNE as opposed to PN?

Had PN for 12 months now. Noticed symptoms have progressed considerbly despite lifestyle measures. initially I was only troubled with pain when sitting, perineal pain resolved on standing.

Gradually my symptoms have worsened, now I have pain on standing literally within a couple of minutes which similarly to sitting builds and builds the longer I stand until I want to sit but cant becausevthats even more painful! I now have an extremely painful perineum and left stabbing buttock pain with rectal and penile shooting pain when I try to walk, I can manage about 5 minutes slow plodding. Sitting even with cushion is now almost impossible for > 5- 10 mins, even lying down on my back causes ^ pain. The Only relief I get is when I lie on my right side half in foetal position!

Awaiting to start my CT injections, PNE ?

Help

Lex
Struggling 37 year old male, Pain started Jan 2011
Unable to work since August 2011
Pudendal neuralgia diagnosed October 2011
Waiting 1st Of three CT guided injections!
Struggling more week by week
carolynm
Posts: 465
Joined: Fri Jul 22, 2011 4:25 am
Location: CO

Re: Is it possible to differentiate PNE from PN from symptom

Post by carolynm »

It's impossible. THey both carry with them the same exact symptoms. Until someone operates on you, it's anyone's guess. A lot of us believe in the Potter MRI in NYC. The results of her interpretation of the MRI has been validated on surgery.

cari
PN after using pickaxe doing yardwork 6/11
Potter MRI: Scar tissue abutting L pudendal.
Hibner consult 10/11 w/ plan: 2 mo. PT
No meds work for me
PRF X 3 times in Denver ( was pain free for 5 months after second)
User avatar
Violet M
Posts: 6679
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: Is it possible to differentiate PNE from PN from symptom

Post by Violet M »

Lex, you may find this article helpful: http://pudendalhope.org/sites/default/f ... iteria.pdf

The Nantes team lays out their criteria for determining if pudendal neuralgia is caused by an entrapment. This is the only published literature I know of for determining a true entrapment. I don't entirely agree with the article since I did not fit some of the criteria but still the information is useful.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
elephants27
Posts: 22
Joined: Fri Feb 25, 2011 12:04 am
Location: Maryland

Re: Is it possible to differentiate PNE from PN from symptom

Post by elephants27 »

Crazy! I am experiencing exactly what you are going through, except i can't lay on my sides,I have to lay on my back(thats not fun at all, on the couch with 2body pillows and 5 other pillows surrounding me, hense i never sleep!), but yes, now it has caused pain in the back and possible other nerve damage.ew. i will have to wait and see yet another doctor..but what i can say is that i have had 2 nerve blocks, and after the 1st one, I was in the OR for the 1st block, and then the butt pain came, I never had pain in the butt before and well my butt falls asleep after 5 minutes of sitting or lying down, but after this dr. did it i did. My 2nd block was a guided ct scan and well worked for a week, but caused sexual dysfunction for 5 months. After the 1st one he said my nerves were entraped, and the 2nd time def. confirmed it.No more nerve blocks for me, i will just have to wait and see if they come out with anything new. I do experience what you have also have pain in the front region as well, since i am a female i do have different pains but other than that they r the same. I do wish you the best with the blocks, and I hope that they do work for you!! I am just a very senstive patient for most doctors to handle. Things work the complete opposite on me as they would for someone else.
Post Reply

Return to “CAUSES & EFFECTS OF PUDENDAL NEURALGIA”