Health Organization for Pudendal Education

Hi everyone

New member here, learning lots about my condition, especially from the forums so thanks.

Do any of the more experienced sufferers know if there are any symptoms more suggestive of PNE as opposed to PN?

Had PN for 12 months now. Noticed symptoms have progressed considerbly despite lifestyle measures. initially I was only troubled with pain when sitting, perineal pain resolved on standing.

Gradually my symptoms have worsened, now I have pain on standing literally within a couple of minutes which similarly to sitting builds and builds the longer I stand until I want to sit but cant becausevthats even more painful! I now have an extremely painful perineum and left stabbing buttock pain with rectal and penile shooting pain when I try to walk, I can manage about 5 minutes slow plodding. Sitting even with cushion is now almost impossible for > 5- 10 mins, even lying down on my back causes ^ pain. The Only relief I get is when I lie on my right side half in foetal position!

Awaiting to start my CT injections, PNE ?

Help

Lex

It's impossible. THey both carry with them the same exact symptoms. Until someone operates on you, it's anyone's guess. A lot of us believe in the Potter MRI in NYC. The results of her interpretation of the MRI has been validated on surgery.

cari

Lex, you may find this article helpful: http://pudendalhope.org/sites/default/f ... iteria.pdf

The Nantes team lays out their criteria for determining if pudendal neuralgia is caused by an entrapment. This is the only published literature I know of for determining a true entrapment. I don't entirely agree with the article since I did not fit some of the criteria but still the information is useful.

Crazy! I am experiencing exactly what you are going through, except i can't lay on my sides,I have to lay on my back(thats not fun at all, on the couch with 2body pillows and 5 other pillows surrounding me, hense i never sleep!), but yes, now it has caused pain in the back and possible other nerve damage.ew. i will have to wait and see yet another doctor..but what i can say is that i have had 2 nerve blocks, and after the 1st one, I was in the OR for the 1st block, and then the butt pain came, I never had pain in the butt before and well my butt falls asleep after 5 minutes of sitting or lying down, but after this dr. did it i did. My 2nd block was a guided ct scan and well worked for a week, but caused sexual dysfunction for 5 months. After the 1st one he said my nerves were entraped, and the 2nd time def. confirmed it.No more nerve blocks for me, i will just have to wait and see if they come out with anything new. I do experience what you have also have pain in the front region as well, since i am a female i do have different pains but other than that they r the same. I do wish you the best with the blocks, and I hope that they do work for you!! I am just a very senstive patient for most doctors to handle. Things work the complete opposite on me as they would for someone else.