Getting more active with pain

Discuss different Pain Management Options; Medication options including side effects and Worldwide variances in names etc.
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Mod4
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Re: Getting more active with pain

Post by Mod4 »

Sunil

If you can forward the document to one of the Mods we can try to upload it for you.
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Violet M
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Re: Getting more active with pain

Post by Violet M »

Mod4, Sunil already sent it to me. I haven't been able to figure out how to get it on the forum but if you can that would be great.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Violet M
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Re: Getting more active with pain

Post by Violet M »

Here it is Sunil.
Getting more active with Pain.pdf
(833.21 KiB) Downloaded 457 times
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
kathyd
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Re: Getting more active with pain

Post by kathyd »

Thanks for loading this!
Very interesting and uplifting..
I am going to try again to be more active, despite the pain...If anything it does help with mood.
I am going to re-read this...wish there was local person here in my are to advise us on how much is safe..
Thanks!
kathyd
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Re: Getting more active with pain

Post by kathyd »

Thanks Sunil
Good advice ... My loved ones are encougaging me to get back to exercising.
It does wonders for the overall mood..I know my doctors would encourage it as well..
Like the presentations said, even if we can walk for short times daily it helps.
I have found that going to the mall is another informal way to get exericise/ walking etc and shopping,even if I don't buy anythings gets my mind back to happier thoughts.
Thx again for posting the presentation.
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Violet M
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Re: Getting more active with pain

Post by Violet M »

Speaking from experience as someone who developed pudendal neuralgia from exercising -- if you have a nerve entrapment exercise can further injure the nerve so just be careful. Swimming is generally considered a good exercise if you have PN. http://www.pudendalhope.info/node/46.#Swimming

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Violet M
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Re: Getting more active with pain

Post by Violet M »

sunil wrote:
I would go further and say that you need to get an exercise program that has been approved by your specialist. In my case I have PN due to SIJ dysfunction, so I got the program from my PT.
Good point Sunil. I agree.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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helenlegs 11
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Re: Getting more active with pain

Post by helenlegs 11 »

Excellent information Sunil.
I can relate to so much of this (in a, 'I know I should way' :oops: ) I particularly like the pacing explanation as opposed to the 'boom and bust' exercise regime that I seem to practice which then simply upholds the exercise=pain nonsense. Although this doesn't stop me as I am bored sick of myself now and this pelvic pain which has defined me for so long.
Love the positivity of all of this.
Thanks,
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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