Hi Folks,
I am relatively new to the site so please excuse me if I posted this Thread in the wrong forum. I also looked through the list of PN aware doctors on here and I didnt see anyone listed in Cleveland Ohio area.
If anyone knows of a PN specialist in Northeast Ohio I would greatly appreciate the information. I have a real good pain management doctor that is able to perform pudendal nerve blocks but thats as far as he goes. He is by no means a specialist in PN and he readily admits that. He is however a very caring, compassionate human being so if there is anyone in my neck of the woods that needs a good pain doc I would be happy to PM you his contact info. I need someone that can look at my Potter MRI and go through all my other records, and list of symptoms that knows what they are talking about. I do have an appointment with the Cleveland Clinic on Feb 15 with an Interventional Radiologist that specializes in Pelvic vascular issues ( thanks Meliora!). The Cleveland Clinic is known to be one of the most advanced health systems in the world... But unfortunately, at least from what I have heard, they really dont have anything to offer when it comes to Pudendal pathologies....
Any suggestions would be very much appreciated! Thanks
~Matt
PN Specialist in Cleveland Ohio Area Needed!
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Thunderman69
- Posts: 53
- Joined: Wed Sep 26, 2012 1:56 am
PN Specialist in Cleveland Ohio Area Needed!
Symptoms started officially on Feb 21, 2012 w/no known cause! Multiple pain flares, ER Visits and tests (had 3T MRI in New York by Hollis Potter). Inconclusive MRI, but finally diagnosed with PN in 2013. Boston Scientific SCS implant surgery done on May 3, 2013.. SCS Implant no longer effective in relieving pain. Condition has deteriorated rapidly since a fall off a ladder in March 2014 (suffered trimalleolar fracture of right ankle). Surgery Consult with Dr. Conway scheduled for June 4. 2015.
Re: PN Specialist in Cleveland Ohio Area Needed!
As far as I know there are no pudendal specialist in the Cleveland area. You will need to travel as most of us do.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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Thunderman69
- Posts: 53
- Joined: Wed Sep 26, 2012 1:56 am
Re: PN Specialist in Cleveland Ohio Area Needed!
Thanks.
What do you know then about anywhere in Ohio or the surrounding states.
Like many of us, I cant sit for more than 10 minutes so traveling is going to be very difficult, meaning someone will need to drive me while I lay down in the back of whatever vehicle I plan on taking. Flying is just gonna be out of the question.
~M
What do you know then about anywhere in Ohio or the surrounding states.
Like many of us, I cant sit for more than 10 minutes so traveling is going to be very difficult, meaning someone will need to drive me while I lay down in the back of whatever vehicle I plan on taking. Flying is just gonna be out of the question.~M
Symptoms started officially on Feb 21, 2012 w/no known cause! Multiple pain flares, ER Visits and tests (had 3T MRI in New York by Hollis Potter). Inconclusive MRI, but finally diagnosed with PN in 2013. Boston Scientific SCS implant surgery done on May 3, 2013.. SCS Implant no longer effective in relieving pain. Condition has deteriorated rapidly since a fall off a ladder in March 2014 (suffered trimalleolar fracture of right ankle). Surgery Consult with Dr. Conway scheduled for June 4. 2015.
Re: PN Specialist in Cleveland Ohio Area Needed!
Hi Matt,
NYT is correct. To the best of our knowledge, there's no one in the Ohio area. If you go to our Home Page and click on Physicians (on the left), it'll give you a listing of PN Specialists by State. Does your PM have any recommendations for you?
Kind regards,
Karyn
NYT is correct. To the best of our knowledge, there's no one in the Ohio area. If you go to our Home Page and click on Physicians (on the left), it'll give you a listing of PN Specialists by State. Does your PM have any recommendations for you?
Kind regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.