dr Baranowski
Posted: Wed Jun 18, 2014 9:53 pm
Hello,
I am new to this forum. I was formally diagnosed with PN about a year ago, but had the pain for over 2 years now. Have been on amitriptyline for 10 months but couldn't stand the side effects, so just weened myself off over the past few weeks. Had to wait for a consultation with one of Dr. Baranowski's consultants for 8 months, who sent me for a couple of nerve blocks (made no difference) and to see a physiotherapist, who gave me a list of reading/books with exercises, but said there is nothing else they can do for me since I am not in agonizing pain. They are also refusing to send me for an MRI scan, even though I thought that's would have been the first step? I've read Amy Stein's book and have been following the exercise routine religiously now for about 2 months and I feel like as long as I make sure I am not too anxious during the day and remember to do the pelvic drop during the day, my symptoms subside..Ive also been doing internal work on myself and I feel like everything together has been helping, though I realise there is still a lot of work to do, but part of me is wondering what if it's something more sinister? something that I won't know until I get a scan? i've asked for an MRI scan several times now, but the consultant I saw is no longer at UCLH and am waiting for another appt with another consultant, but I don't know how long it will take. I just got the u-shaped cushion, so will see if it makes a difference, but its not something i'll be able to use at work, since we have a hot desk policy and it will just look odd to people/they will start asking questions which i wouldn't want to answer, plus my job is very stressful and it's not an option to go part-time.. Feel a bit stuck, really hoping that exercises and internal massage will start paying off very soon. It's so hard to keep head up some days..
I am new to this forum. I was formally diagnosed with PN about a year ago, but had the pain for over 2 years now. Have been on amitriptyline for 10 months but couldn't stand the side effects, so just weened myself off over the past few weeks. Had to wait for a consultation with one of Dr. Baranowski's consultants for 8 months, who sent me for a couple of nerve blocks (made no difference) and to see a physiotherapist, who gave me a list of reading/books with exercises, but said there is nothing else they can do for me since I am not in agonizing pain. They are also refusing to send me for an MRI scan, even though I thought that's would have been the first step? I've read Amy Stein's book and have been following the exercise routine religiously now for about 2 months and I feel like as long as I make sure I am not too anxious during the day and remember to do the pelvic drop during the day, my symptoms subside..Ive also been doing internal work on myself and I feel like everything together has been helping, though I realise there is still a lot of work to do, but part of me is wondering what if it's something more sinister? something that I won't know until I get a scan? i've asked for an MRI scan several times now, but the consultant I saw is no longer at UCLH and am waiting for another appt with another consultant, but I don't know how long it will take. I just got the u-shaped cushion, so will see if it makes a difference, but its not something i'll be able to use at work, since we have a hot desk policy and it will just look odd to people/they will start asking questions which i wouldn't want to answer, plus my job is very stressful and it's not an option to go part-time.. Feel a bit stuck, really hoping that exercises and internal massage will start paying off very soon. It's so hard to keep head up some days..